Support Group Member Survey
This survey will help us to improve services and funding needed to improve the quality of life for people with PF across the UK.
1.
Please tell us a bit about you
I am a patient
Carer / Family member
Bereaved family member or friend
Health care professional
Other (please specify)
2.
How long have you been involved with a support group?
Less than 1 year
1-3 years
3-5 years
More than 5 years
3.
Name of the Support Group you attend
4.
The support group has helped me to:
Feel part of a supportive community
Strongly Agree
Agree
Disagree
Strongly Disagree
5.
Feel more informed about Pulmonary Fibrosis
Strongly Agree
Agree
Disagree
Strongly Disagree
6.
Feel more informed about managing day-to-day symptoms more effectively
Strongly Agree
Agree
Disagree
Strongly Disagree
7.
Access other helpful support and resources when needed
Strongly Agree
Agree
Disagree
Strongly Disagree
8.
What do you value most about your support group?
9.
Is there anything you would change or like to see improved about your group?
10.
To help us develop our content for newsletters and updates, please tell us which of the following areas interest you most (Tick all that apply)
Support Group News
Personal Stories About PF
Volunteering Opportunities
Research/Clinical Trials
Fundraising
Campaign Work
Health Education
11.
If you are currently signed up to receive our newsletter/magazine, we would value your feedback.
12.
If you do not receive our APF newsletter / insider magazine and wish to in future, please leave your contact details below: Name, Postal Address, Email.
* You can opt out of receiving our magazine or newsletter at anytime by emailing optout@actionpf.org or calling 01733 475 642.
Thank you for taking the time to complete this survey