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KS / CHH survey 4 - Depression & emotional aspects.
1.
Do you or have you ever suffered depression which you directly relate to
KS / CHH
No, never had depressive episodes directly linked to my condition
Yes, have had depressive episodes in the past directly linked to my condition
Yes, have frequent and on-going depressive episodes directly linked to my condition
Yes, have depressive episodes but not directly related to KS / CHH
Do not wish to answer
Other (please specify)
2.
Have you ever been prescribed medication or undergone counselling for
depression in addition to regular hormone replacement therapy?
Tick all that apply.
On no medication at all. - Hormone replacement or anti-depression medication
On hormone replacement therapy only.
On anti-depression medication only.
On both hormone replacement therapy and anti-depression medication
Have had counselling sessions in the past
Undergoing counselling sessions at present
Would undergoing counselling if available
Have no need for counselling
Do not wish to answer
Other (please specify)
3.
Would you consider being off medication as being a major cause of
depression?
Tick any that apply.
No, my depressive episodes do not seem related to me being on treatment or not
Yes, I feel my depressive episodes are directly linked to whether I am on hormone replacement therapy or not.
No, I feel like I have never experienced depressive episodes related to my condition
Yes, I consider my depressive episodes can relate directly to my hormone levels while on treatment.
I have had less depressive episodes since I was diagnosed.
Do not wish to answer
Other (please specify)
4.
Self harm
I have considered but not experienced self harm in response to my experiences coping with KS / CHH
I have had episodes of self harm in the past in response to my experiences coping with KS / CHH
I have never considered or experienced self harm
I had considered self harm before diagnosis but not since
Choose not to answer
Other (please specify)
5.
What impact do patient groups on Facebook and other sites have on your
experience with KS / CHH.
Tick any that apply
Facebook groups are a good source of medical information on KS / CHH
Facebook groups are a good way of connecting with fellow patients but would not trust them for
medical information on KS / CHH
I am pleased the Facebook groups exist and I try to contribute as much as I can
I am pleased the Facebook groups exist but I do not feel any need to post anything.
The fact that I know that I am not alone with my condition is enough for me, I do not need to participate in the group I am
happy just to be a member.
Patient groups can have a negative influence on my experience by highlighting the worse aspects of the condition.
I wish more people who have had more positive experiences with KS / CHH would post in the Facebook groups.
Choose not to answer
Other (please specify)
6.
Which emotional problems would you directly link to having KS / CHH?
Tick all that apply.
Depression
Anxiety in talking to people at all times
Anxiety in talking to people in social situations or non-work related situations
Feeling isolated within a social group of friends or colleagues
Socially introverted
Bipolar disorder
Constant feeling of pessimism
Constant feeling of hopelessness
Dysphoria (but not specifically gender dysphoria)
Gender dysphoria
Choose not to answer
Other (please specify)
7.
Please rate this statement.
"I can not escape the fact I have KS / CHH. I am reminded of the fact I have
this condition every day and it has a major impact on my emotional
wellbeing."
Strongly agree
Agree
Somewhat agree
Neither agree nor disagree
Somewhat disagree
Disagree
Strongly Disagree
Other (please specify)
8.
Which of these do you think are important in helping you deal with having
KS / CHH.
Tick all that apply and add your own suggestions.
Early diagnosis
Treatment starting in teenage years
Gaining correct and up to date information about the condition
Being able to communicate with fellow patients through social media
Being able to contact medical specialists with direct knowledge of KS / CHH treatment
Meeting fellow patients in person through patient meetings
Being able to access fertility treatment easily
Watching You Tube videos from fellow patients talking about their own experiences with the condition
Forming a relationship with a partner
Being confident to have sexual relations
Choose not to answer
Other (please specify)
9.
What one suggestion (if any) would you make that could make your life
easier in dealing with KS / CHH.
Current Progress,
0 of 9 answered
