Action Duchenne’s vision, in the long-term, is to offer everybody living with Duchenne the support and training they need to transition to an independent adult life which matches their aspirations. We know that this will be a large undertaking, so this project aims to take the first step and allow us to work with you, the young adults, to formalise the training and support you want and need, and to find out what you want to achieve in life.

This survey will help shape the project we are working on which is supported by Demelza House, to help young people with Duchenne transition to adulthood.

Please add as much detail as you are able to.

Thank you for your feedback!

Ravi Mehta | Project Engagement & Support Coordinator | Action Duchenne

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