Pancreatic Cancer UK wants to know more about people’s experiences of NanoKnife (Irreversible Electroporation or IRE) to treat pancreatic cancer.

This survey asks about your experiences of the IRE procedure and its impact on you. The findings will be used as evidence in a report to the National Institute for Health and Care Excellence (NICE), which is carrying out a consultation on IRE. IRE is currently only available on the NHS as part of research studies, and at one private hospital in London. NICE is looking at whether IRE should be available on the NHS, and your views will help inform the consultation. You can read more about IRE on our website: http://www.pancreaticcancer.org.uk/information-and-support/treatments-for-pancreatic-cancer/irreversible-electroporation-nanoknife/

Your answers to this survey are completely confidential and will remain anonymous in any future report or communication about this survey. 

If you need any help completing the survey, please call Leah Miller, Policy and Campaigns Officer at Pancreatic Cancer UK on 0203 727 5545 or email leah.miller@pancreaticcancer.org.uk

We would really appreciate it if you could complete the survey by 10th November 2016. 

Thank you.

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* 1. What is your gender?

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* 2. What is your age?

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* 3. What is your ethnicity?

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* 4. What is your postcode?

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* 5. When were you diagnosed with pancreatic cancer?

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* 6. What type of pancreatic cancer were you diagnosed with?

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* 7. What stage was your cancer when you were diagnosed?

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* 8. What treatments have you had so far?

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* 9. Where do you have your treatment?

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* 10. Have you had IRE?

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* 11. Please answer the following questions if you have had IRE. If you are waiting to have IRE please go to Question 19

Where did you have IRE?

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* 12. When did you have IRE?

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* 13. Was it part of a research study?

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* 14. Did you have IRE privately?

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* 15. At what stage was your pancreatic cancer when you had IRE?

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* 16. Did you have open IRE (where the doctors make a big cut in your tummy area to insert the needles) or percutaneous IRE (where the needles are inserted through your skin?

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* 17. Were you receiving any other treatments at the same time as IRE?

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* 18. As far as you know, how well has IRE worked for you?

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* 19. Please answer the following questions if you are waiting to have IRE. If you have had IRE please go to Question 23

Where are you planning to have IRE?

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* 20. When are you planning to have it?

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* 21. Will it be part of a research study?

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* 22. Will you be having IRE privately?

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* 23. Are you willing to have potential side effects of IRE if there is a chance of it helping you to live longer?

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* 24. All respondents: How did you find out about IRE?

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* 25. Do you feel you had/have enough information about IRE?

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* 26. What were/are your reasons for having IRE?

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* 27. Please answer the following questions if you have had IRE. If you are waiting to have IRE please go to Question 35

Compared to before you had IRE, how would you rate your quality of life now?

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* 28. What physical impact has IRE had on you? e.g. mobility, pain/discomfort, lack of energy, etc.

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* 29. What impact has IRE had on your ability to take part in normal daily activities?

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* 30. What side effects did you have as a result of IRE?

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* 31. What have been the advantages of having IRE?

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* 32. What have been the disadvantages of having IRE?

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* 33. Based on your experience would you recommend IRE to other people with pancreatic cancer?

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* 34. Do you think IRE should be made available on the NHS to everyone who is suitable?

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* 35. All respondents: Please feel free to write any other comments you have about IRE

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* 36. Pancreatic Cancer UK would like to thank you for your time in giving us your valuable feedback on IRE. If you would like to receive a summary of the findings please write your name and address/email address in the box below:

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* 37. Pancreatic Cancer UK might like to discuss your responses further. If you are happy for us to do this, please write your name and address/email address in the box below:

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* 38. Pancreatic Cancer UK will be looking for people who are willing to be case studies for this consultation. This would involve being contacted separately by Pancreatic Cancer UK and asked further questions about your experiences. Case studies may be approached for further comment in other documents or for media purposes. If this is something you would be interested in, please write your name and address/email address in the box below:

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