Ichthyosis Related Research Question Title * 1. Which areas would you like researchers to focus on? (please indicate order of importance to you with 1 being most important and 4 being the least important). 1 2 3 4 Better understanding of the causes of ichthyosis. For example: genetics, the way the skin works, or prevention of the condition. 1 2 3 4 Better diagnosis of the specific types of ichthyosis. 1 2 3 4 Improvements in the treatment of ichthyosis. For example: creams or oral medication. 1 2 3 4 Improved treatment and understanding of the psychosocial needs and wellbeing of individuals and families living with ichthyosis. OK Question Title * 2. Is there an area of research not mentioned above you'd like to see funded? Please also use this space to expand on your answers above. OK Question Title * 3. What type of ichthyosis affects you or your family? X linked ichthyosis Autosomal Recessive Congenital Ichthyosis (ARCI) ie Collodion baby, Lamellar ichthyosis, Congenital Ichthyosiform Erythroderma, Harlequin ichthyosis, Bathing Suit ichthyosis Epidermolytic ichthyosis (EI)/ Bullous ichthyosis (BIE) Acquired ichthyosis CHILD syndrome Conradi Hunnerman Syndrome Dariers Disease Erythrokeratoderma Variablis (EKV) Follicular ichthyosis Ichthyosis Bullosa of Siemens Ichthyosis En Confetti Ichthyosis Hystrix Ichthyosis Simplex KID Syndrome Sjorgen Larsson Syndrome Vohwinkel Syndrome Netherton Syndrome Palmoplantar Keratoderma (PPK) Ichthyosis vulgaris Undiagnosed/Unknown/Other OK Question Title * 4. Please tell us a little about you. Are you...? an Individual with ichthyosis a Parent/Carer/Legal Guardian a Grandparent a Sibling a Family Member a Friend a Spouse/Partner Other (please specify) OK Question Title * 5. May we contact you should we wish to discuss your replies in more detail? Yes No OK Question Title * 6. If you answered yes to Q5. please enter your email address below. Thank you! OK FINISH