Patient involvement and interest in the digital storytelling for women with arrhythmia survey

Introduction

We are lending our support to develop a research project helping women with arrhythmia’s (heart rhythm disorders) to reflect upon their experiences and create Patient Voices digital stories of those experiences that might be used to inform and educate patients, carers and clinicians. We are also planning to assess the impact of the stories on the level of compassion and empathy among patients and clinicians. In this survey, we would like to hear from patients who have arrhythmias (heart rhythm disorders) or palpitations (sense of irregular heart beat or racing of the heart), their carers, families and general public.

The results from the survey will remain confidential and anonymous. Results of the summarised data from the survey may be used in research applications to reflect the attitude and interest from the public and patient group.

This survey should take no longer than 5 minuets to complete.

Thank you for your interest in this short survey.

Question Title

* 1. How do you identify yourself in gender?

Female

Male

Neutral

Transgender

I prefer not to say

None of the above. Please specify

Question Title

* 2. Do you feel there is any need for the expression of patients’ voice from people who are experiencing or caring for those with arrhythmias (heart rhythm problems)?

No, there is no need

Yes, there is a need

Neither of the above. Please specify

Question Title

* 3. Which of the following group would you be interested in hearing their experience with arrhythmias? (Select all that apply)

Women

Men

Children and young people

Elderly

Black, Asian and Minority Ethnic (BAME)

People with special needs

Carers to people with arrhythmias

Others, such as:

Question Title

* 4. Would you be interested to hear a series of recorded storytelling by women with arrhythmias?

Yes

Neither of the above. Please specify

Question Title

* 5. Would you find other people’s life experience with arrhythmias of any relevance to you?

Yes

Question Title

* 6. Would you think a research comparing the level of compassion, empathy, education and awareness among patients, carers and medical professionals prior to and after listening to the stories on arrhythmia be of any meaning or significance to you?

No, I do not find it meaningful or significant

Yes, I find it meaningful and significant

Neither of the above. Please specify

Question Title

* 7. Lastly, would you kindly give us some suggestions on what type/focus of research you would be interested to participate or read about related to arrhythmia