Welcome to the LEAP Direct Payment Survey

Thank you in advance for taking the time to read the following information.

Cerebra is dedicated to helping families who have a child with a brain condition. We believe that being a family is about discovering life together. That’s no different for families of a child with a brain condition – except that there can be more challenges to overcome along the way. We believe the best way to overcome them is by joining families on that journey – at every step. First, we use what they tell us to inspire the world class research and innovation that Cerebra supports. Then we work with them to make the best use of the knowledge we develop so that they can go on to discover a more included, fulfilled and enjoyable life together.

Why are we carrying out this survey?
 Cerebra's Legal Entitlements and Problem-solving (LEAP) team has identified that getting and managing direct payments can be a problem which can impact on the wellbeing of the child and/or his or her family. We’d like to find out more about the experiences of families in getting and managing direct payments and we would be grateful if you could complete this short survey. The results of the survey will be used to inform our work and enable us to better support families in the future.

Who can participate?

We are interested in hearing from parents/carers who:
are currently receiving direct payments; or
have been offered direct payments but decided not to accept them; or
have requested or accepted an offer of direct payments and the system is still being set up; or
used to receive direct payments but decided to stop using them.

If you require a paper copy of the survey please email Derek Tilley at derekt@cerebra.org.uk (please specify if you require larger text).

How long will the survey take me to complete?

We estimate the survey will take 10-15 minutes to complete.

Is the survey easy to complete?

Yes, all the questions are multiple choice or just require very short answers. You don’t have to fill in the sections that ask for more information but if you have something to share we’d like to hear about it.

Will my information be confidential?

All data collected will remain anonymous and will be kept in a database that is only accessible to those working on the survey.
What are the possible benefits of taking part?

Your contribution to this research is invaluable. While you may not benefit directly by completing the survey we hope that the information you give us will help inform Cerebra’s work in this area and potentially help other parents and young people in the future.

What do I do if I experience any problems with the survey or want to complain?

Please email Derek Tilley at derekt@cerebra.org.uk.
I have read the above and I am happy to participate. What do I do now?
Excellent! Thank you for agreeing to take part. Please click 'NEXT' below to go to the survey.

Please note: if you used to receive direct payments and then stopped please complete the survey as if you still receive them. Thank you.