My 'neuro' diagnosis - what it means for me.

Introduction

Welcome to our P-CNS "Neuro Diagnosis' survey, being run in partnership with the Lifestyle Health Foundation (LHF), who are running a related "My Diagnosis" survey.

The purpose of both surveys is to collect anonymous thoughts and data, that will encourage, support and shape the design and provision of more person-centred emotional health services.

Our survey is focused on questions relating to conditions attributed to 'abnormal' brain function, such as ADHD, Brain Tumours, Epilepsy, Migraine, MND, Multiple Sclerosis and Parkinson's.

If you happen to have landed on this page after completing the related Lifestyle Health Foundation survey and have yet to press 'submit' at the end of that survey, please do so, before closing that web browser window.

If you have been diagnosed with more than one medical condition, please answer the initial questions for that diagnosis considered to be the most impactful for you.

You are offered the opportunity, if you wish, to answer the same questions, for a 2nd and any further diagnoses.

Should one of those diagnoses be a non-neuro one e.g. asthma or diabetes, please complete the LHF questionnaire (if you haven't already done so) at https://uk.surveymonkey.com/r/FRLSQDW

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* 1. Please write the name of the neuroscience/neurological diagnosis in the following box.

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* 2. When did you receive the diagnosis (approx)?

Less than 6 months ago

Between 6 months and 1 year

Over 1 year and up to 5 years ago

Over 5 years and up to 10 years ago

Over 10 years and up to 20 years ago

Over 20 years ago

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* 3. Thinking about what for you is the most impactful aspect of your experience since this diagnosis, please share what that would be, in about 50 words or less.

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* 4. Were you given the opportunity to share this information with your lead health professional/practitioner or team member?

Yes

Don't remember

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* 5. Using the following scale, please indicate how much you feel the diagnosis has become part of who you think you are (ie your identity)?

Not at all

Very much so

Not at all

Very much so

If you wish to explain your answer, please use the following box.

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* 6. Please indicate, using the following, how the diagnosis has impacted your thoughts and emotions (overall):

An experiencing of considerable stress and anxiety

No impact

An experiencing of peace and calm

An experiencing of considerable stress and anxiety

No impact

An experiencing of peace and calm

If you wish to explain your answer, use the following box.

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* 7. Which of the following two questions would you choose to answer, in order for you to share thoughts and emotions.

On a scale of 1 (best of health) to 10 (the worst of health) how well are you?

On a scale of 1 (best of health) to 10 (the worst of health) how ill are you?

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* 1. Please write the name of the neuroscience/neurological diagnosis in the following box.

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* 2. When did you receive the diagnosis (approx)?

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* 3. Thinking about what for you is the most impactful aspect of your experience since this diagnosis, please share what that would be, in about 50 words or less.

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* 4. Were you given the opportunity to share this information with your lead health professional/practitioner or team member?

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* 5. Using the following scale, please indicate how much you feel the diagnosis has become part of who you think you are (ie your identity)?

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* 6. Please indicate, using the following, how the diagnosis has impacted your thoughts and emotions (overall):

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* 7. Which of the following two questions would you choose to answer, in order for you to share thoughts and emotions.

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* 8. Should you like to share any further aspects of your experience living with this diagnosis, please use the following box.