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Disability History Month 2023

UK Disability History Month 2023 is focussing on Children and Youth. We thought this would give us a great opportunity to give our community space to reflect on their experience of growing up with a muscle wasting or weakening condition (or being a parent/carer to someone living with a muscle wasting or weakening condition).

This could be about someone who is currently a child or young person, or an adult looking back at their experience.

We will take entries and compile them across the entire month on our website.

If you have any questions, please email movingup@musculardystrophyuk.org
1.You can write about your experience below. It can be any part of growing up. And it can focus on the good, or the bad, or both.
2.Is there anything that you wish would change in the future?
3.If there’s anything you wish could say to yourself when growing up, or to someone else growing up with a muscle wasting or weakening condition?
4.How would you like to be referred to when we publish these quotes, e.g. name, age, etc. If you would like to stay anonymous, just put “Anon”. If you’re completing this for someone, please say your relation to them, when they were growing up etc.
5.I agree that the information that I have provided can be used and might be edited for ease of reading, clarity etc.(Required.)