Autism strategy

Neurodiverse Self Advocacy survey for Autism Strategy

This is a quiz about important issues to consider in designing local autism support services. Please help us to shape the services so they deliver what autistic people really want and need.

Thank you very much in advance.

Question Title

1. You are

An autistic person

An autistic parent / carer of autistic or ND children/family members

An autistic autism professional

An autistic autism professional who is also a parent of autistic / ND children

Neurodivergent with ADHD, Dyslexia, Dyspraxia, Tourette or other ND condition

A NT (neurotypical) family member /carer for an autistic person

A NT professional

A neurotypical member of the public

Other (please specify)

Question Title

2. Which region do you live in

North East of England

North West of England

East Anglia

East Midlands

West Midlands

South East

South West

London

Scotland

Wales

Northern Ireland

Other

Other (please specify)

Question Title

3. Do you feel that existing autism (or neurodiversity) services in your area satisfy your needs

Satisfy very well

Satisfy a little

Don't satisfy your needs

I am not aware of autism/ ND services in my area

Question Title

4. Autism services that are important to me are

Other (please specify)

Question Title

5. The post diagnostic support should

Be designed and delivered by peer autistic / ND people

Be designed and delivered by NT people

Question Title

6. The post-diagnostic support should (check all that applies)

Help to understand what it means to be autistic

Help me to problem solve my issues, achieve my goals

Build confidence and positive autistic identity

Educate about neurodiversity

Educate about the double empathy problem

Help me to understand, focus on my strengths strengths

Help me to advocate for myself

Help me to manage my challenges

Talk about deficits and the triad of impairments

Question Title

7. Post diagnostic support should

Be a mixture of group and 1:1 support

Just 1:1 support

Just group support

Question Title

8. Post diagnostic support should

Involve some online resources/ course I can access on my own anytime

Be just a verbal discussion

A mixture of discussion and an online course

Question Title

9. The areas of support for autistic people should be prioritised as follows

	Most important	Second in importance	Third	4th	5th	6th	7th
Changing the narrative of autism (or ND) from deficits to strengths	Changing the narrative of autism (or ND) from deficits to strengths Most important	Changing the narrative of autism (or ND) from deficits to strengths Second in importance	Changing the narrative of autism (or ND) from deficits to strengths Third	Changing the narrative of autism (or ND) from deficits to strengths 4th	Changing the narrative of autism (or ND) from deficits to strengths 5th	Changing the narrative of autism (or ND) from deficits to strengths 6th	Changing the narrative of autism (or ND) from deficits to strengths 7th
Mental health and wellbeing	Mental health and wellbeing Most important	Mental health and wellbeing Second in importance	Mental health and wellbeing Third	Mental health and wellbeing 4th	Mental health and wellbeing 5th	Mental health and wellbeing 6th	Mental health and wellbeing 7th
Employment	Employment Most important	Employment Second in importance	Employment Third	Employment 4th	Employment 5th	Employment 6th	Employment 7th
Family and relationships	Family and relationships Most important	Family and relationships Second in importance	Family and relationships Third	Family and relationships 4th	Family and relationships 5th	Family and relationships 6th	Family and relationships 7th
Education	Education Most important	Education Second in importance	Education Third	Education 4th	Education 5th	Education 6th	Education 7th
Advocacy in health and social care/benefits	Advocacy in health and social care/benefits Most important	Advocacy in health and social care/benefits Second in importance	Advocacy in health and social care/benefits Third	Advocacy in health and social care/benefits 4th	Advocacy in health and social care/benefits 5th	Advocacy in health and social care/benefits 6th	Advocacy in health and social care/benefits 7th
Criminal justice	Criminal justice Most important	Criminal justice Second in importance	Criminal justice Third	Criminal justice 4th	Criminal justice 5th	Criminal justice 6th	Criminal justice 7th
Other	Other Most important	Other Second in importance	Other Third	Other 4th	Other 5th	Other 6th	Other 7th

Other (please specify)

Question Title

10. The services for autistic people should be led by

NT professionals

Autistic / ND professionals

Autistic / ND peers with lived experience

NT volunteers

NT parents and family members

Other (please specify)

Question Title

11. I need the services delivered

Face to face, I am going to travel and meet people

Online via video conferencing, I don't need to travel, but I need internet access

A mix of online and face to face depending on the service

Question Title

12. Please describe a service you would like to use

Question Title

13. Organisations such as NAS, and national charities for ADHD, Dyslexia, Dyspraxia, Tourette, Dyscalculia etc are effective at supporting me

Strongly agree

Agree

Neither agree nor disagree

Disagree

Strongly disagree

Question Title

14. Organisations helping me effectively should (tick all that applies)

Develop strategy

Lobby the central government / influence policy

Lobby the local government

Deliver professional training

Deliver services that are practically helpful to me

Deliver services online so I could access them

Deliver services locally

Other (please specify)

Question Title

15. The organisations supporting autistic / ND people locally should

Work together

Be unified in one organisation

Work independently but coordinate/share best practice

Work in silos

Question Title

16. Organisations helping autistic people and organisations for ADHD, Dyslexia, Dyspraxia, Tourette etc., should

Work together

Be unified in one organisation under the umbrella of Neurodiversity

Work independently but coordinate/share best practice

Work in silos

Question Title

17. Concerning the payment for the support for autistic / ND people,

All support should be free

I would contribute payments to some of the service fees

I am willing to fully pay for services that meet my needs (if they can't be available otherwise)

Other (please specify)

Question Title

18. There should be awareness campaigns helping the wider community to understand the positives of autism / ND and bust the stereotypes

Strongly agree

Agree

Neither agree nor disagree

Disagree

Strongly disagree

Question Title

19. About you. Would you describe yourself as

With learning difficulty

Without learning difficulty (without intellectual disability)

Question Title

20. Would you describe yourself as

Speaking

Non-speaking

Other (please specify)

Question Title

21. Would you describe yourself as having

No support needs

'Low support needs'

Medium support needs

High support needs

Question Title

22. Do you consider yourself disabled?

Yes

Question Title

23. Do you consider yourself to be part of Black African, Caribbean or Ethnic Minority (including Asian) group?

Yes

Question Title

24. Doyou consider yourself to be part of LGBTQIA+

Yes

Question Title

25. Do you consider that your strengths are (tick all that applies)

Problem solving

Creativity

Out of the box thinking

Independent thinking

Being systematic/systematising

Being systemic/seeing the big picture

3D thinking/ visualisation

Deep specialist knowledge

Hyper focus

Pattern recognition

Empathy

Attention to detail

Drive / persistence

Resilience

Loyalty

Candor

Sense of justice

Cooperation/collaboration/team work

Leadership

Planning

Organisation

Communication

Socialising

Coping with change

Other (please specify)

Question Title

26. Are you employed?

Yes

Other (please specify)

Question Title

27. What would be the biggest positive change at work? (tick all that applies)

Reasonable Adjustments

Better understanding of autism/ND by managers

Support to managers to learn to work with you (an autistic/ND person)

Training colleagues about autism/ND

Coaching/mentoring for you (an autistic /ND person)

Support with wellbeing for you (an autistic/ND person)

Senior managers role modeling inclusion of autistic/ND people

Better understanding of autism/ND in society

Zero tolerance to bullying

Other (please specify)

Question Title

28. Anything else you would like the autism strategy to consider?

Question Title

29. Do you have

A mental health condition (other than autism, although autism is not a mental health condition)

A physical health condition

None of the above

Question Title

30. How many times per year do you see your GP

More than 8

Question Title

31. How many times per year do you see a consultant

More than 5

Question Title

32. Have you received a good autism support service? Please describe the service and what was good about it

Question Title

33. Do you have any of additional co-occuring conditions?

ADHD

Dyslexia

Dyspraxia

Bipolar

Anxiety

Depression

Epilepsy

Other (please specify)

	Very important	Important	Somewhat important (a little)	Not important
Access to diagnosis	Access to diagnosis Very important	Access to diagnosis Important	Access to diagnosis Somewhat important (a little)	Access to diagnosis Not important
Autism / neurodiversity training for professionals	Autism / neurodiversity training for professionals Very important	Autism / neurodiversity training for professionals Important	Autism / neurodiversity training for professionals Somewhat important (a little)	Autism / neurodiversity training for professionals Not important
Pre-diagnostic support while waiting	Pre-diagnostic support while waiting Very important	Pre-diagnostic support while waiting Important	Pre-diagnostic support while waiting Somewhat important (a little)	Pre-diagnostic support while waiting Not important
Information, referrals and advocacy on my health and benefits/social care needs	Information, referrals and advocacy on my health and benefits/social care needs Very important	Information, referrals and advocacy on my health and benefits/social care needs Important	Information, referrals and advocacy on my health and benefits/social care needs Somewhat important (a little)	Information, referrals and advocacy on my health and benefits/social care needs Not important
Post self-identification/post-diagnostic support processing the diagnosis / autism understanding	Post self-identification/post-diagnostic support processing the diagnosis / autism understanding Very important	Post self-identification/post-diagnostic support processing the diagnosis / autism understanding Important	Post self-identification/post-diagnostic support processing the diagnosis / autism understanding Somewhat important (a little)	Post self-identification/post-diagnostic support processing the diagnosis / autism understanding Not important
Autistic peer support group/ ND group	Autistic peer support group/ ND group Very important	Autistic peer support group/ ND group Important	Autistic peer support group/ ND group Somewhat important (a little)	Autistic peer support group/ ND group Not important
Building positive autistic identity and self confidence	Building positive autistic identity and self confidence Very important	Building positive autistic identity and self confidence Important	Building positive autistic identity and self confidence Somewhat important (a little)	Building positive autistic identity and self confidence Not important
Help problem solving/achieving my goals/ peer mentoring 1:1	Help problem solving/achieving my goals/ peer mentoring 1:1 Very important	Help problem solving/achieving my goals/ peer mentoring 1:1 Important	Help problem solving/achieving my goals/ peer mentoring 1:1 Somewhat important (a little)	Help problem solving/achieving my goals/ peer mentoring 1:1 Not important
Support for my family	Support for my family Very important	Support for my family Important	Support for my family Somewhat important (a little)	Support for my family Not important
Education for my extended family and friends	Education for my extended family and friends Very important	Education for my extended family and friends Important	Education for my extended family and friends Somewhat important (a little)	Education for my extended family and friends Not important
Educating and building acceptance of autism/ND in my community	Educating and building acceptance of autism/ND in my community Very important	Educating and building acceptance of autism/ND in my community Important	Educating and building acceptance of autism/ND in my community Somewhat important (a little)	Educating and building acceptance of autism/ND in my community Not important
Support for my parenting	Support for my parenting Very important	Support for my parenting Important	Support for my parenting Somewhat important (a little)	Support for my parenting Not important
Support with diagnosis/SEN/EHCP for my children	Support with diagnosis/SEN/EHCP for my children Very important	Support with diagnosis/SEN/EHCP for my children Important	Support with diagnosis/SEN/EHCP for my children Somewhat important (a little)	Support with diagnosis/SEN/EHCP for my children Not important
Day services doing arts/mindfulness/activities	Day services doing arts/mindfulness/activities Very important	Day services doing arts/mindfulness/activities Important	Day services doing arts/mindfulness/activities Somewhat important (a little)	Day services doing arts/mindfulness/activities Not important
Goal oriented 1:1 peer mentoring for my needs	Goal oriented 1:1 peer mentoring for my needs Very important	Goal oriented 1:1 peer mentoring for my needs Important	Goal oriented 1:1 peer mentoring for my needs Somewhat important (a little)	Goal oriented 1:1 peer mentoring for my needs Not important
General befriending having a coffee with a volunteer	General befriending having a coffee with a volunteer Very important	General befriending having a coffee with a volunteer Important	General befriending having a coffee with a volunteer Somewhat important (a little)	General befriending having a coffee with a volunteer Not important
Help developing life skills	Help developing life skills Very important	Help developing life skills Important	Help developing life skills Somewhat important (a little)	Help developing life skills Not important
Help developing communication	Help developing communication Very important	Help developing communication Important	Help developing communication Somewhat important (a little)	Help developing communication Not important
Independent travel training	Independent travel training Very important	Independent travel training Important	Independent travel training Somewhat important (a little)	Independent travel training Not important
Help into employment/ to retain employment	Help into employment/ to retain employment Very important	Help into employment/ to retain employment Important	Help into employment/ to retain employment Somewhat important (a little)	Help into employment/ to retain employment Not important
Help advocating for myself in health services	Help advocating for myself in health services Very important	Help advocating for myself in health services Important	Help advocating for myself in health services Somewhat important (a little)	Help advocating for myself in health services Not important
Advocacy	Advocacy Very important	Advocacy Important	Advocacy Somewhat important (a little)	Advocacy Not important
Help with benefits	Help with benefits Very important	Help with benefits Important	Help with benefits Somewhat important (a little)	Help with benefits Not important
Help with social services	Help with social services Very important	Help with social services Important	Help with social services Somewhat important (a little)	Help with social services Not important
Help with police/criminal justice	Help with police/criminal justice Very important	Help with police/criminal justice Important	Help with police/criminal justice Somewhat important (a little)	Help with police/criminal justice Not important
Counselling/Psychotherapy	Counselling/Psychotherapy Very important	Counselling/Psychotherapy Important	Counselling/Psychotherapy Somewhat important (a little)	Counselling/Psychotherapy Not important
Support with romantic relationships with existing partner	Support with romantic relationships with existing partner Very important	Support with romantic relationships with existing partner Important	Support with romantic relationships with existing partner Somewhat important (a little)	Support with romantic relationships with existing partner Not important
Finding a relationship partner	Finding a relationship partner Very important	Finding a relationship partner Important	Finding a relationship partner Somewhat important (a little)	Finding a relationship partner Not important
Other	Other Very important	Other Important	Other Somewhat important (a little)	Other Not important

Autism strategy

Neurodiverse Self Advocacy survey for Autism Strategy

Question Title

* 1. You are

Question Title

* 2. Which region do you live in

Question Title

* 3. Do you feel that existing autism (or neurodiversity) services in your area satisfy your needs

Question Title

* 4. Autism services that are important to me are

Question Title

* 5. The post diagnostic support should

Question Title

* 6. The post-diagnostic support should (check all that applies)

Question Title

* 7. Post diagnostic support should

Question Title

* 8. Post diagnostic support should

Question Title

* 9. The areas of support for autistic people should be prioritised as follows

Question Title

* 10. The services for autistic people should be led by

Question Title

* 11. I need the services delivered

Question Title

* 12. Please describe a service you would like to use

Question Title

* 13. Organisations such as NAS, and national charities for ADHD, Dyslexia, Dyspraxia, Tourette, Dyscalculia etc are effective at supporting me

Question Title

* 14. Organisations helping me effectively should (tick all that applies)

Question Title

* 15. The organisations supporting autistic / ND people locally should

Question Title

* 16. Organisations helping autistic people and organisations for ADHD, Dyslexia, Dyspraxia, Tourette etc., should

Question Title

* 17. Concerning the payment for the support for autistic / ND people,

Question Title

* 18. There should be awareness campaigns helping the wider community to understand the positives of autism / ND and bust the stereotypes

Question Title

* 19. About you. Would you describe yourself as

Question Title

* 20. Would you describe yourself as

Question Title

* 21. Would you describe yourself as having

Question Title

* 22. Do you consider yourself disabled?

Question Title

* 23. Do you consider yourself to be part of Black African, Caribbean or Ethnic Minority (including Asian) group?

Question Title

* 24. Doyou consider yourself to be part of LGBTQIA+

Question Title

* 25. Do you consider that your strengths are (tick all that applies)

Question Title

* 26. Are you employed?

Question Title

* 27. What would be the biggest positive change at work? (tick all that applies)

Question Title

* 28. Anything else you would like the autism strategy to consider?

Question Title

* 29. Do you have

Question Title

* 30. How many times per year do you see your GP

Question Title

* 31. How many times per year do you see a consultant

Question Title

* 32. Have you received a good autism support service? Please describe the service and what was good about it

Question Title

* 33. Do you have any of additional co-occuring conditions?

1. You are

2. Which region do you live in

3. Do you feel that existing autism (or neurodiversity) services in your area satisfy your needs

4. Autism services that are important to me are

5. The post diagnostic support should

6. The post-diagnostic support should (check all that applies)

7. Post diagnostic support should

8. Post diagnostic support should

9. The areas of support for autistic people should be prioritised as follows

10. The services for autistic people should be led by

11. I need the services delivered

12. Please describe a service you would like to use

13. Organisations such as NAS, and national charities for ADHD, Dyslexia, Dyspraxia, Tourette, Dyscalculia etc are effective at supporting me

14. Organisations helping me effectively should (tick all that applies)

15. The organisations supporting autistic / ND people locally should

16. Organisations helping autistic people and organisations for ADHD, Dyslexia, Dyspraxia, Tourette etc., should

17. Concerning the payment for the support for autistic / ND people,

18. There should be awareness campaigns helping the wider community to understand the positives of autism / ND and bust the stereotypes

19. About you. Would you describe yourself as

20. Would you describe yourself as

21. Would you describe yourself as having

22. Do you consider yourself disabled?

23. Do you consider yourself to be part of Black African, Caribbean or Ethnic Minority (including Asian) group?

24. Doyou consider yourself to be part of LGBTQIA+

25. Do you consider that your strengths are (tick all that applies)

26. Are you employed?

27. What would be the biggest positive change at work? (tick all that applies)

28. Anything else you would like the autism strategy to consider?

29. Do you have

30. How many times per year do you see your GP

31. How many times per year do you see a consultant

32. Have you received a good autism support service? Please describe the service and what was good about it

33. Do you have any of additional co-occuring conditions?