Research Priorities - HCP

Research Priorities

The NET Patient Foundation and the Association for Multiple Endocrine Neoplasia Disorders (AMEND) are developing a joint research strategy to ensure that each charity’s research funds are directed towards the most appropriate areas of research. As a health professional, your feedback is vital in helping us to achieve a strategy that is fit for purpose, realistic and most importantly, based on the priorities of those working in the field of neuroendocrine/endocrine tumours. Please take a few minutes to share your thoughts with us about the type of research that you feel should be a priority. Thank you.

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* 1. Please prioritise the following research areas that you feel are important:

Early diagnosis - better detection for new tumour growth and recurrent disease more quickly to improve outcomes

Less invasive tests for diagnosis - better detection for new tumour growth and recurrent disease more quickly to improve outcomes

Symptom control - finding the best combinations of treatments to help control symptoms

Tumour biology. formation, structure and genetics of tumour cells to try and identify new and more effective treatments

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* 2. Please prioritise the following research areas that you feel are important to you:

Less invasive tests for monitoring disease

Research into the emotional impact of diagnosis

Research into the emotional impact of living with disease

The development of a national registry for disease research

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* 3. Please prioritise the following research areas that you feel are important:

Effects of long term hormone secretion activity

Effects of long term treatments

End of life care

New treatments ( incl new surgical techniques)

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* 4. Please prioritise the following research areas that you feel are important:

Effect off hormonal secretions on emotional well being

Effects of hormone section on fertility and pregnancy

Effects of treatments on fertility and pregnancy

Research into treatments for high grade disease