Survey on design of clinical trials to improve bone health in DMD - Parent/guardian version
Poor bone health and fractures are very common in boys with DMD. However, there is still very little information on how to treat weak bones (osteoporosis) in these boys. We would like to develop clinical trials to improve bone health in DMD and would like to know your opinion. Your opinion is extremely important and we would take your feedback into consideration when we are designing our research study. We would be very grateful if you could fill in this survey which consists of 15 questions and should take you approximately 15 minutes. If you are not a parent/guardian or primary carer of a boy with DMD, please do not fill this survey.
Thank you for taking the time to complete this survey.
Dr Shuko Joseph (Clinical Academic Fellow, Glasgow)
Ms Marina DiMarco (Princpal Neuromuscular Physiotherapist, Glasgow)
Ms Jen Dunne (Neuromuscular Nurse Specialist, Glasgow)
Dr Iain Horrocks (Consultant Paediatric Neurologist, Glasgow)
Dr Jarod Wong (Senior Clinical Lecturer Paediatric Endocrinology, Glasgow)