I-DSD/ I-CAH User Group Meeting 2020- Feedback Evaluation

Feedback Survey

Wednesday 9th September 2020 Zoom Webinar

Thank you for attending the I-DSD/I-CAH User Group meeting.

The organising committee would be grateful if you could complete the following on-line questionnaire which should not take more than 5 minutes of your time.

Contact: registry@i-dsd.org

Upon submission of the evaluation form, you will be able to download a CPD certificate.

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* 1. Name

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* 2. Email

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* 3. Organisation/Department

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* 4. Job Title

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* 5. Were the learning aims/objectives of the event met?

Yes

Mostly

Please specify:

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* 6. Was there any bias or conflict of interest in the event?

Yes

Please specify:

How would you rate the following presentations?
5: Excellent - 1: Poor

Question Title

* 7. Management of gonads in adults with AIS (Lloyd Tack)

	1	2	3	4	5
Content	Content 1	Content 2	Content 3	Content 4	Content 5
Benefit to professional / personal development	Benefit to professional / personal development 1	Benefit to professional / personal development 2	Benefit to professional / personal development 3	Benefit to professional / personal development 4	Benefit to professional / personal development 5

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* 8. Clinical and histological outcomes in 45,X/46,XY males (Marie Lindhardt Johansen)

	1	2	3	4	5
Content	Content 1	Content 2	Content 3	Content 4	Content 5
Benefit to professional / personal development	Benefit to professional / personal development 1	Benefit to professional / personal development 2	Benefit to professional / personal development 3	Benefit to professional / personal development 4	Benefit to professional / personal development 5

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* 9. Trends in gonadectomy in DSD (Angela Lucas-Herald)

	1	2	3	4	5
Content	Content 1	Content 2	Content 3	Content 4	Content 5
Benefit to professional / personal development	Benefit to professional / personal development 1	Benefit to professional / personal development 2	Benefit to professional / personal development 3	Benefit to professional / personal development 4	Benefit to professional / personal development 5

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* 10. Testosterone replacement therapy in adolescence (Mariana Stancampiano)

	1	2	3	4	5
Content	Content 1	Content 2	Content 3	Content 4	Content 5
Benefit to professional / personal development	Benefit to professional / personal development 1	Benefit to professional / personal development 2	Benefit to professional / personal development 3	Benefit to professional / personal development 4	Benefit to professional / personal development 5

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* 11. Long term outcome of 46, XY Leydig Cell Hypoplasia (Alessandra Boncampagni)

	1	2	3	4	5
Content	Content 1	Content 2	Content 3	Content 4	Content 5
Benefit to professional / personal development	Benefit to professional / personal development 1	Benefit to professional / personal development 2	Benefit to professional / personal development 3	Benefit to professional / personal development 4	Benefit to professional / personal development 5

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* 12. Gonadal outcome in 17b-HSD def and 5a-reductase def (Sabine Hannema)

	1	2	3	4	5
Content	Content 1	Content 2	Content 3	Content 4	Content 5
Benefit to professional / personal development	Benefit to professional / personal development 1	Benefit to professional / personal development 2	Benefit to professional / personal development 3	Benefit to professional / personal development 4	Benefit to professional / personal development 5

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* 13. Optimizing mineralocorticoid replacement in CAH (Riccardo Pofi)

	1	2	3	4	5
Content	Content 1	Content 2	Content 3	Content 4	Content 5
Benefit to professional / personal development	Benefit to professional / personal development 1	Benefit to professional / personal development 2	Benefit to professional / personal development 3	Benefit to professional / personal development 4	Benefit to professional / personal development 5

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* 14. Changes in surgical practice in CAH (Alexander Springer)

	1	2	3	4	5
Content	Content 1	Content 2	Content 3	Content 4	Content 5
Benefit to professional / personal development	Benefit to professional / personal development 1	Benefit to professional / personal development 2	Benefit to professional / personal development 3	Benefit to professional / personal development 4	Benefit to professional / personal development 5

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* 15. Adrenal insufficiency related adverse events in CAH (Salma Ali)

	1	2	3	4	5
Content	Content 1	Content 2	Content 3	Content 4	Content 5
Benefit to professional / personal development	Benefit to professional / personal development 1	Benefit to professional / personal development 2	Benefit to professional / personal development 3	Benefit to professional / personal development 4	Benefit to professional / personal development 5

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* 16. Clinical care and outcomes in rare forms of CAH (Irina Bacila)

	1	2	3	4	5
Content	Content 1	Content 2	Content 3	Content 4	Content 5
Benefit to professional / personal development	Benefit to professional / personal development 1	Benefit to professional / personal development 2	Benefit to professional / personal development 3	Benefit to professional / personal development 4	Benefit to professional / personal development 5

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* 17. Cardiometabolic morbidity in adults with CAH (Beatrice Righi)

	1	2	3	4	5
Content	Content 1	Content 2	Content 3	Content 4	Content 5
Benefit to professional / personal development	Benefit to professional / personal development 1	Benefit to professional / personal development 2	Benefit to professional / personal development 3	Benefit to professional / personal development 4	Benefit to professional / personal development 5

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* 18. Growth-related characteristics in CAH patients <18 years (Mallory Farrar)

	1	2	3	4	5
Content	Content 1	Content 2	Content 3	Content 4	Content 5
Benefit to professional / personal development	Benefit to professional / personal development 1	Benefit to professional / personal development 2	Benefit to professional / personal development 3	Benefit to professional / personal development 4	Benefit to professional / personal development 5

Summary

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* 19. What was your overall impression of this event?

	Excellent	Good	Satisfactory	Mediocre	Poor
Programme	Programme Excellent	Programme Good	Programme Satisfactory	Programme Mediocre	Programme Poor
Quality of Education	Quality of Education Excellent	Quality of Education Good	Quality of Education Satisfactory	Quality of Education Mediocre	Quality of Education Poor
Organisation	Organisation Excellent	Organisation Good	Organisation Satisfactory	Organisation Mediocre	Organisation Poor

Additional Comments

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* 1. Name

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* 2. Email

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* 3. Organisation/Department

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* 4. Job Title

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* 5. Were the learning aims/objectives of the event met?

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* 6. Was there any bias or conflict of interest in the event?

Question Title

* 7. Management of gonads in adults with AIS (Lloyd Tack)

Question Title

* 8. Clinical and histological outcomes in 45,X/46,XY males (Marie Lindhardt Johansen)

Question Title

* 9. Trends in gonadectomy in DSD (Angela Lucas-Herald)

Question Title

* 10. Testosterone replacement therapy in adolescence (Mariana Stancampiano)

Question Title

* 11. Long term outcome of 46, XY Leydig Cell Hypoplasia (Alessandra Boncampagni)

Question Title

* 12. Gonadal outcome in 17b-HSD def and 5a-reductase def (Sabine Hannema)

Question Title

* 13. Optimizing mineralocorticoid replacement in CAH (Riccardo Pofi)

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* 14. Changes in surgical practice in CAH (Alexander Springer)

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* 15. Adrenal insufficiency related adverse events in CAH (Salma Ali)

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* 16. Clinical care and outcomes in rare forms of CAH (Irina Bacila)

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* 17. Cardiometabolic morbidity in adults with CAH (Beatrice Righi)

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* 18. Growth-related characteristics in CAH patients <18 years (Mallory Farrar)

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* 19. What was your overall impression of this event?

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* 20. What did you like most about this event?

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* 21. What did you like least about this event?

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* 22. Are there any specific topics/speakers you would like to see included in future events?