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Introduction

You are welcome to translate this survey into your preferred language using online apps

The HIV peer support information exchange and training project was initiated in January 2020 by Dr Hideta Nakamura, University of the Ryukyus, Japan and Ben Collins and Nia Dunbar, ReShape, International HIV Partnerships (IHP), with Garry Brough, Positively UK, and Simon Collins, i-Base and HIV service providers and peer supporters across Asia.

Our original goal was to host a face-to-face HIV peer support information exchange and training in Japan this December 2020. With that intent we conducted a needs assessment in January and February 2020, which most of you completed. (Thank you.)

In total, we had approximately 60 responses from over 40 organisations in cities across Asia, including Bangkok, Beijing, Chiang Mai, Goa, Hong Kong, Islamabad, Kuala Lumpur, Manilla, Seoul, Shanghai, Singapore, Taichung, Taipei, and Tokyo.

Because of Covid-19 we have postponed the face-to-face meeting until 2021.

We will begin the exchange/training with a Zoom meeting on Saturday, 19 December at 09:00 London, 14:00 Islamabad, 16:00 Bangkok, 17:00 Beijing, Shanghai, Singapore and Taipei, 18:00 Seoul and Tokyo. Please save the date and time.

To ensure the most effective exchange among participants, please answer these 17 short questions about peer support in your location/country. We'll share the results with you before the December meeting. Thank you for your participation. 

When completing the survey, please keep in mind:

 - You don't need to answer every question
 - You don't need to complete this survey to attend, but we hope you do
 - Total questions: 17
 - For easier access to this survey, you are welcome to translate it into our preferred language using any of the online translation apps
 - You may answer questions in your preferred language
 - Any personal contact information will be kept confidential and not be shared
 

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* 1. Please share your:

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* 2. Do you provide HIV peer support as a service in your organisation?

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* 3. If yes, how many clients are currently involved in your peer support programme?

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* 4. If no, do you have a system of referral to another organisation/s providing peer support in your location/country?

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* 5. Who are the people your organisation serves? (Please check as many as apply)

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* 6. From the list above, what are your 3 largest client populations?

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* 7. How is peer support conducted in your organization or the organization to which you refer your clients? (Please check as many as apply)

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* 8. From the list above, what are the 3 most common methods used?

About HIV peer support and HIV treatment peer support in your location

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To refresh your memory, in the early 2020 survey the key HIV issues people mentioned were:

To refresh your memory, in the early 2020 survey the key HIV issues people mentioned were:
Additional comments from the original survey by location:

Hong Kong - Chemsex
Japan  - Concentration of awareness and strategic national resources
Malaysia  - Reluctance to start ARV treatment due to anticipated side effects and reliance on traditional therapies
 - Chemsex, mental health of PLHIV & members of key  opulations
Pakistan  - Taboo, depression, isolation etc.
Philippines  - ARVs for children
 - Psychological support for PLHIV, including women and their children
Singapore  - HIV education among youths and getting them to test regularly
 - No trans-specific HIV programs when they still labelled the
transgender community as key affected population
 - For MSM, sex workers & people who use drugs communities, there are many barriers to accessing HIV testing
 - PrEP, PEP, including cost, stigma
 - There is criminalization of consensual same-sex intimacy
between adult men
 - Partial ban on PLHIV
 - Criminalisation of PLHIV who do not disclose status to sex partners
South Korea  - Labour rights of people living with HIV
 - Conservative Christian group’s strategic attack on HIV/AIDS
related issues
 - Internalized stigma among PLHIV
Taiwan  - People with HIV are rejected by doctors in other divisions (e.g.
dentists)
 - Foreigners with HIV to pay treatment by themselves for the
first two years
 - Right of people living with HIV, HIV stigma
 - Chemsex
 - Criminalization of HIV on non- disclosure, exposure, transmission
Thailand  - U=U
 - Interventions for chemsex is limited

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* 9. What specific subjects are addressed in your peer support trainings? (Please check all subjects covered.)

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* 10. From the list above, what are the 3  subjects most discussed in peer support?

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* 11. Are there specific areas that you would like to improve or introduce in your HIV peer support? (Please list)

HIV treatment-specific peer support in your location

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To refresh your memory, in the early 2020 survey the key HIV treatment issues people mentioned were:

To refresh your memory, in the early 2020 survey the key HIV treatment issues people mentioned were:
Additional comments from the original survey by location:

China  - The cost of HIV medicine
Hong Kong - Treatment isn’t a big issue.
- Treatment are generally well adhered.
Japan - Patients must apply for public welfare service in order for
financial support that covers expensive ART. Due to the
obsolete and strict eligible criteria, they have to wait until the disease progresses to some extent. It is the
out of world standard.
- Adverse effects due to long term ART.
- Prejudice from health care providers 
- Internal/felt stigma of patients.
Malaysia -Treatment fatigue & giving up after many years of successful viral load suppression
- Options to latest ART, access to latest ART blocked by patent issue
Pakistan - Viral load testing issues.
- Doctors awareness issues.
Philippines - Pill fatigue and mental health issues for persons living with HIV
Singapore - Zero outreach, no trans-specific HIV information on prevention and treatment. Zero information and accessibility for the trans community
- Lack of sufficient psycho-social support within the community, due to stigma, and this may contribute to challenges in clinical treatment
South Korea - There is no nursing home/hospital for people living with HIV/AIDS.
- In Korea, national health care covers ART and its side effects.
Taiwan - Resist to initiate treatment due to internal/external stigma of HIV
Thailand - Availability of generic treatments
- Late diagnosis
- False information about ARVs
- Treatment avoidance
- Living with HIV is still highly stigmatized.

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* 12. What specific subjects do your address in your HIV treatment-specific peer support training? (Please check all subjects covered.)

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* 13. From the list above, what are the 3 treatment subjects most discussed in peer support?

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* 14. If there are specific treatment areas where you would like an update or more specific advanced training please list them here.

Key obstacles and key successes in your HIV peer support programme

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* 15. Please describe a key obstacle you encounter which limits effective peer support in your location.

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* 16. Please describe a key success in your HIV peer support work.

We may ask some of you to share your obstacles or successes in very short videos, in English, with participants prior to the 19 December meeting. This can be very helpful to others. We hope you’ll consider it.

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* 17. You can use this space to add any additional comments or questions.

Thanks very much for your participation.
We look forward to seeing you on the 19th of December.

If you have any questions about this survey, please contact Nia Dunbar at nd@ihp.hiv. 
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