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Management of children with medical complexity

Many thanks for agreeing to take part in this survey.

We are currently looking at ways to help provide support and educational materials for professionals looking after children with medical complexity and their families.

Two questions at the end of the survey refer specifically to Covid-19.

For the purpose of this questionnaire we are defining children with medical complexity as, 'those with substantial medical needs, healthcare utilisation and morbidity.'
Ontario team (2019)

Many thanks
1.Which speciality are you training/working in?
2.What Grade are you currently?
3.Whilst working with children with medical complexity, what difficulties have you encountered?
4.When considering the management of a child with medical complexity, are there any areas that you wish you knew more about?
5.Adjuncts:
How confident are you at managing children who require/have:
Extremely confident
Very confident
Somewhat confident
Not so confident
Not at all confident
Long term ventilation
Gastrostomy/Jejunostomy
Tracheostomy
VP shunt
Communication aids
6.Planning for the future:
How confident are you in your knowledge about:
Extremely confident
Very confident
Somewhat confident
Not so confident
Not at all confident
Advance Care Plans
Assessing the baseline of a child with medical complexity
Transition to adult services
Legal framework surrounding consent
GP annual Health review
Funding/financial support available to families
7.End of life:
How confident are you regarding the following:
Extremely confident
Very confident
Somewhat confident
Not so confident
Not at all confident
Discussing the need for end of life care
Management of a child at the end of life
Involvement of the palliative care team
Symptom control
8.Conditions:
How confident do you feel in managing the following:
Extremely confident
Very confident
Somewhat confident
Not so confident
Not at all confident
Sleeping difficulties
Difficult behaviour
Children with Visual Impairment
Children with Hearing Impairment
Poor nutrition/faltering growth in a child with medical complexity
Children who are not able to communicate verbally
9.How confident would you feel about approaching a complex ethical scenario involving your patient?
10.How confident would you be at dealing with a situation of escalating conflict with a family?
11.Covid-19:  What difficulties have you encountered during the pandemic in managing children with medical complexity?
12.Covid-19: Regarding the management of children with medical complexity, are there areas of your work that you feel you need to adapt post Covid-19?
Current Progress,
0 of 12 answered