8% of survey complete.
Why are we running this survey?

We want to find out the effect COVID-19 has had on people with ME. We have received anecdotal reports around this, and therefore are undertaking a survey to reach a wider group of people with ME. 

We will use the results of the survey to help us in our campaign to make the government aware of the impact that COVID-19 has on people with ME.

Participation is voluntary and all responses are anonymous. When testing this survey, respondents took about 5 minutes to fill it in. 

  • You must have a diagnosis of ME/CFS (ME, CFS, or CFS/ME)
  • You must have had COVID-19 (you don’t need to have had a positive test result or a diagnosis by a doctor)
  • You must be 16 or older; if you are under 16 a parent/carer can fill this in on your behalf
Who’s running the survey?

This is a collaboration between Action for M.E. and #MEAction. 

The information you provide is anonymous and will be held jointly by Action for M.E., #MEAction UK and #MEAction Scotland. You can request for your submission to be deleted at any point up to the analysis. To do this, you need to e-mail policy@actionforme.org.uk with the date and time of your submission. 

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* 1. Who is filling in the survey?

If you are filling out this survey on behalf of someone else, please answer each question from their perspective. 

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* 2. Do you have a diagnosis of ME, ME/CFS, CFS/ME or CFS?

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* 3. Do you experience post-exertional malaise (PEM)? This is a worsening of symptoms after minimal physical, cognitive or emotional exertion which can be delayed by 24-72 hours or more.

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* 4. Have you had COVID-19? (Please tick the first answer that applies to you)