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Pulmonary Hypertension Global Patient Survey

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To complete the survey in a different language click on 'ENGLISH' in the top right hand corner.
This first global survey is to improve our understanding of how pulmonary hypertension (PH) affects the lives of patients and their families to improve the delivery of care worldwide. The survey can be completed by patients with PH, or a family member or caregiver on behalf of the patient. If the patient is below 16 years of age, the survey must be completed by a parent or guardian.
This survey consists of three sections with each section taking approximately 10 minutes to complete.

Thank you once again for contributing to improving worldwide patient care and experience.
This survey has been developed by PH specialists and patient groups from the Pulmonary Hypertension Associations of Europe, United States, United Kingdom and South Africa. It was coordinated by the Pulmonary Vascular Research Institute's (PVRI) Patient Engagement & Empowerment taskforce and endorsed by ERN-Lung.
In submitting this form, I agree to my details being used for the purposes of the PVRI's Patient Engagement & Empowerment Workstream. The information will only be accessed by necessary university staff. I understand my data will be held securely and will not be distributed to third parties. I have a right to change or access my information. I understand that when this information is no longer required for this purpose, due diligence will be followed to dispose of my data. We use the personal data you have given us in order to communicate with you in the event you share your contact information at the end of the Global Patient Survey. This processing is conducted lawfully on the basis of legitimate interests, it is in our interests to analyse medical data. Where we rely on legitimate interests, we will always make sure that we balance these interests against your rights. All data from this survey will be anonymised when used in academic publication and presentation.

Data Privacy Notices in English, Spanish, French, Italian, Portuguese, and German and more information on the survey can be found here:

If you have any queries, please contact PVRI at

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