SurveyMonkey Powered Online Survey

Hello,

This is our regular survey looking at women’s experiences of miscarriage care in the UK.

The Mumsnet Miscarriage Care campaign has run since 2010 and its aims are to ensure that all miscarrying women, and all women experiencing other forms of pregnancy loss, get the good, respectful, empathetic care that they need.

Although our campaign is principally about miscarriage care, many aspects also apply to other forms of pregnancy loss, such as ectopic pregnancies that are ended by medical treatment, or stillbirths. Women who have experienced these since September 2018 are very welcome to fill in the survey. Apologies in advance if some of the questions aren’t appropriate to your situation, but there should always be an option for you to say that something isn’t applicable to you.

Because the aim of the survey is partly to compare results with previous surveys and see what (if any) changes there have been, we’re asking only women in the UK who have experienced pregnancy loss since September 2018 to fill this one in.

We know that pregnancy loss can be a difficult thing to talk about, so thank you in advance for sharing your experiences in the survey. We’ll use the results to inform and update the campaign.

A note about language: we’ve tried to be as sensitive as possible in choosing our words here. We hope we’ve made the right choices, but please do give us your feedback if you think something isn’t right.

Thanks

MNHQ

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* 1. How many episodes of pregnancy loss have you experienced in total (including prior to September 2018)?

One

Two

Three

Four

Five

Six

Seven or more

Not sure

None

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* 2. Thinking about your most recent episode of pregnancy loss: which of these best describes it?

Miscarriage

Ectopic pregnancy

Stillbirth (post-24 weeks of pregnancy)

Other (please state)

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* 3. How many weeks pregnant were you when you lost your pregnancy? (Throughout this survey, if you have experienced more than one pregnancy loss since September 2018, please answer for your most recent experience.)

Less than 4 weeks

From 4 up to 6 weeks

From 6 up to 12 weeks

From 12 up to 16 weeks

From 16 up to 20 weeks

Over 20 weeks

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* 4. Who among the following, if anyone, did you talk to about your pregnancy loss? Please select all that apply.
(If you have experienced more than one pregnancy loss since September 2018, please answer for your most recent experience.)

Partner or spouse

Close friend

Close family member

Wider friends

Wider family

Posted on Mumsnet about it

Internet users (not Mumsnet)

Miscarriage Association

SANDS

Another helpline, support group or online service provided by a specialist organisation

Other (please specify)

No-one

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* 5. Were healthcare professionals aware of your pregnancy loss at any stage or did you deal with it without informing any medical staff?
(If you have experienced more than one pregnancy loss since September 2018, please answer for your most recent experience.)

Healthcare professionals were aware while it was happening (eg you miscarried in hospital or it was discovered following a routine scan)

Healthcare professional was aware after it had occurred (eg you dealt with it at home then told your GP or midwife)

Dealt with it without informing any medical professional - no medical staff knew it had happened, either at the time, or subsequently

Can't remember

Don't know

I'd prefer not to say

Other (please specify)

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* 6. If you were treated in hospital for your pregnancy loss, did any of the following happen to you?

	Yes this happened to me	No this did not happen to me	Don't know	N/A	I'd prefer not to say
You waited for a scan to confirm your pregnancy loss alongside women with ongoing pregnancies	You waited for a scan to confirm your pregnancy loss alongside women with ongoing pregnancies Yes this happened to me	You waited for a scan to confirm your pregnancy loss alongside women with ongoing pregnancies No this did not happen to me	You waited for a scan to confirm your pregnancy loss alongside women with ongoing pregnancies Don't know	You waited for a scan to confirm your pregnancy loss alongside women with ongoing pregnancies N/A	You waited for a scan to confirm your pregnancy loss alongside women with ongoing pregnancies I'd prefer not to say
On leaving a scan that confirmed your pregnancy loss, you walked through or waited in a room alongside women with ongoing pregnancies	On leaving a scan that confirmed your pregnancy loss, you walked through or waited in a room alongside women with ongoing pregnancies Yes this happened to me	On leaving a scan that confirmed your pregnancy loss, you walked through or waited in a room alongside women with ongoing pregnancies No this did not happen to me	On leaving a scan that confirmed your pregnancy loss, you walked through or waited in a room alongside women with ongoing pregnancies Don't know	On leaving a scan that confirmed your pregnancy loss, you walked through or waited in a room alongside women with ongoing pregnancies N/A	On leaving a scan that confirmed your pregnancy loss, you walked through or waited in a room alongside women with ongoing pregnancies I'd prefer not to say
You were placed on an ordinary prenatal or postnatal ward	You were placed on an ordinary prenatal or postnatal ward Yes this happened to me	You were placed on an ordinary prenatal or postnatal ward No this did not happen to me	You were placed on an ordinary prenatal or postnatal ward Don't know	You were placed on an ordinary prenatal or postnatal ward N/A	You were placed on an ordinary prenatal or postnatal ward I'd prefer not to say
You were placed on a ward with women having procedures to terminate unwanted pregnancies	You were placed on a ward with women having procedures to terminate unwanted pregnancies Yes this happened to me	You were placed on a ward with women having procedures to terminate unwanted pregnancies No this did not happen to me	You were placed on a ward with women having procedures to terminate unwanted pregnancies Don't know	You were placed on a ward with women having procedures to terminate unwanted pregnancies N/A	You were placed on a ward with women having procedures to terminate unwanted pregnancies I'd prefer not to say
You had access to a dedicated early pregnancy unit	You had access to a dedicated early pregnancy unit Yes this happened to me	You had access to a dedicated early pregnancy unit No this did not happen to me	You had access to a dedicated early pregnancy unit Don't know	You had access to a dedicated early pregnancy unit N/A	You had access to a dedicated early pregnancy unit I'd prefer not to say

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* 7. If you were referred for an initial scan to assess the situation, how long did you have to wait for the scan to take place?

Under 4 hours

Between 4 and 8 hours

Between 8 and 24 hours

Between 1 and 2 days

Between 3 and 4 days

Don’t know

N/A

More than 4 days (please specify)

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* 8. If you were referred for surgical management of miscarriage (previously known as ‘evacuation of retained products of conception', or ERPC), how many days did you wait between your diagnosis and the surgical procedure?

Less than a day

Next day

2-3 days

4 days or more

Don’t know

N/A

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* 9. If you miscarried or lost your pregnancy in hospital, how would you describe the information you were given about what would happen to the remains?

Information was comprehensive and compassionate

It was accurate but lacked compassion

It was compassionate but not clear

It was sketchy and lacked compassion

No information available

N/A

Don't know

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* 10. If you miscarried at home following medical attention (expectant management), do you feel you were given good, clear information about how painful the experience might be?

Yes, the information I was given was clear; it prepared me adequately for the experience and/or gave me the information I needed to seek further advice if necessary

No, the information I was given didn’t prepare me for the experience and/or give me the information I needed to seek further advice if necessary

I wasn’t given any information about pain at all

Don't know

N/A

Other (please state)

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* 11. If you miscarried at home following medical attention (expectant management) did you feel you were given adequate pain relief medication?

I was given adequate pain relief

I did not need pain relief

I was not given or offered adequate pain relief

I was not given or offered any pain relief at all, but I did need some

Don't know

N/A

Other (please state)

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* 12. If you miscarried at home following medical attention (expectant management), do you feel you were given good, clear information about what the overall experience might be like, and how best to look after yourself or prepare others to look after you?

The information I was given was clear and informative

The information I was given was not clear enough or informative enough

I wasn’t given any information about miscarrying at home at all

I didn’t need any information about miscarrying at home

I didn’t feel strongly either way about the information I was given

N/A

Don't know

Other (please state)

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* 13. After your miscarriage or other form of pregnancy loss (whether at home or in hospital), were you contacted by anyone related to your medical care who seemed unaware that you had lost the pregnancy? If so, by whom?

Yes - by GP practice (GP, practice nurse, receptionist)

Yes - by community midwife

Yes - by hospital midwife

Yes - by other hospital staff

Yes - by commercial company, e.g. retailers' baby clubs

Other (please state)

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* 14. If you were unhappy with the care you received from any healthcare professional or service, did you make any complaint afterwards?

NA: Was happy with care / didn't see any healthcare professionals/ not stated

Yes - unhappy with care and made a complaint

No - unhappy with care but did not make a complaint

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* 15. And if you were unhappy, but did not make a complaint, why not? Please tick all that apply.

NA: Was happy with care / didn't see any healthcare professionals/ not stated

NA: I did make a complaint

The process of complaining seemed long-winded and I just didn’t have the energy

I didn’t want people to get into trouble

I felt protective of staff who had treated me well

I was worried that the complaints process would be upsetting

I just wanted to try to forget about it

I didn’t think complaining would make any difference

I didn’t know how to complain

I wasn’t sure whether I’d misunderstood what had happened to me

Other (please specify)

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* 16. Was there anything about your care you were particularly happy or unhappy about? If so, please tell us about it if you’re comfortable doing so

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* 17. Were you...

	Yes	No	Don't know	Not applicable
Were you offered follow-up medical care with a midwife?	Were you offered follow-up medical care with a midwife? Yes	Were you offered follow-up medical care with a midwife? No	Were you offered follow-up medical care with a midwife? Don't know	Were you offered follow-up medical care with a midwife? Not applicable
Were you offered follow-up medical care with a nurse?	Were you offered follow-up medical care with a nurse? Yes	Were you offered follow-up medical care with a nurse? No	Were you offered follow-up medical care with a nurse? Don't know	Were you offered follow-up medical care with a nurse? Not applicable
Were you offered follow-up medical care with a GP?	Were you offered follow-up medical care with a GP? Yes	Were you offered follow-up medical care with a GP? No	Were you offered follow-up medical care with a GP? Don't know	Were you offered follow-up medical care with a GP? Not applicable
Were you offered follow-up medical care with an obstetrician?	Were you offered follow-up medical care with an obstetrician? Yes	Were you offered follow-up medical care with an obstetrician? No	Were you offered follow-up medical care with an obstetrician? Don't know	Were you offered follow-up medical care with an obstetrician? Not applicable
Were you offered any other follow-up medical care?	Were you offered any other follow-up medical care? Yes	Were you offered any other follow-up medical care? No	Were you offered any other follow-up medical care? Don't know	Were you offered any other follow-up medical care? Not applicable
Were you offered counselling by a hospital?	Were you offered counselling by a hospital? Yes	Were you offered counselling by a hospital? No	Were you offered counselling by a hospital? Don't know	Were you offered counselling by a hospital? Not applicable
Were you offered counselling by a GP or midwife?	Were you offered counselling by a GP or midwife? Yes	Were you offered counselling by a GP or midwife? No	Were you offered counselling by a GP or midwife? Don't know	Were you offered counselling by a GP or midwife? Not applicable
Did you feel the need for follow-up medical care (such as an appointment with a GP or at a hospital clinic)?	Did you feel the need for follow-up medical care (such as an appointment with a GP or at a hospital clinic)? Yes	Did you feel the need for follow-up medical care (such as an appointment with a GP or at a hospital clinic)? No	Did you feel the need for follow-up medical care (such as an appointment with a GP or at a hospital clinic)? Don't know	Did you feel the need for follow-up medical care (such as an appointment with a GP or at a hospital clinic)? Not applicable
Did you feel you could benefit from one or more counselling sessions?	Did you feel you could benefit from one or more counselling sessions? Yes	Did you feel you could benefit from one or more counselling sessions? No	Did you feel you could benefit from one or more counselling sessions? Don't know	Did you feel you could benefit from one or more counselling sessions? Not applicable
Did you pro-actively seek follow-up medical care?	Did you pro-actively seek follow-up medical care? Yes	Did you pro-actively seek follow-up medical care? No	Did you pro-actively seek follow-up medical care? Don't know	Did you pro-actively seek follow-up medical care? Not applicable
Did you pro-actively seek counselling?	Did you pro-actively seek counselling? Yes	Did you pro-actively seek counselling? No	Did you pro-actively seek counselling? Don't know	Did you pro-actively seek counselling? Not applicable
Did you pro-actively seek privately-paid counselling?	Did you pro-actively seek privately-paid counselling? Yes	Did you pro-actively seek privately-paid counselling? No	Did you pro-actively seek privately-paid counselling? Don't know	Did you pro-actively seek privately-paid counselling? Not applicable

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* 18. For each of the following NHS healthcare professionals who may have been involved in your treatment for miscarriage or pregnancy loss, please rate them for how empathetic and compassionate they were, where '5' is excellent and '1' is awful

	1 (Awful)	2	3	4	5 (Excellent)	N/A
GP	GP 1 (Awful)	GP 2	GP 3	GP 4	GP 5 (Excellent)	GP N/A
GP receptionist	GP receptionist 1 (Awful)	GP receptionist 2	GP receptionist 3	GP receptionist 4	GP receptionist 5 (Excellent)	GP receptionist N/A
Hospital receptionist	Hospital receptionist 1 (Awful)	Hospital receptionist 2	Hospital receptionist 3	Hospital receptionist 4	Hospital receptionist 5 (Excellent)	Hospital receptionist N/A
Community midwife	Community midwife 1 (Awful)	Community midwife 2	Community midwife 3	Community midwife 4	Community midwife 5 (Excellent)	Community midwife N/A
Hospital midwife	Hospital midwife 1 (Awful)	Hospital midwife 2	Hospital midwife 3	Hospital midwife 4	Hospital midwife 5 (Excellent)	Hospital midwife N/A
Hospital consultant	Hospital consultant 1 (Awful)	Hospital consultant 2	Hospital consultant 3	Hospital consultant 4	Hospital consultant 5 (Excellent)	Hospital consultant N/A
Hospital nurse	Hospital nurse 1 (Awful)	Hospital nurse 2	Hospital nurse 3	Hospital nurse 4	Hospital nurse 5 (Excellent)	Hospital nurse N/A
Sonographer	Sonographer 1 (Awful)	Sonographer 2	Sonographer 3	Sonographer 4	Sonographer 5 (Excellent)	Sonographer N/A
Counsellor	Counsellor 1 (Awful)	Counsellor 2	Counsellor 3	Counsellor 4	Counsellor 5 (Excellent)	Counsellor N/A
Hospital chaplain	Hospital chaplain 1 (Awful)	Hospital chaplain 2	Hospital chaplain 3	Hospital chaplain 4	Hospital chaplain 5 (Excellent)	Hospital chaplain N/A

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* 19. Throughout your miscarriage or pregnancy loss, how would you rate the information you were given by NHS healthcare staff?

Comprehensive

Mostly full and useful, with some gaps

An even mixture of useful and lacking in information

Mostly lacking in information, but with some helpful/informative bits

Inadequate and/or misleading

Don’t know

N/A

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* 20. If you sought or received medical attention from the NHS, how would you rate your overall care?

Excellent

Good

Neither particularly good nor particularly bad

Poor

Very poor

Don't know

N/A

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* 21. For each of the following sources of support for women who are miscarrying or experiencing pregnancy loss, please rate them for how sympathetic and compassionate they were.

	Very supportive	Quite supportive	Neither supportive nor unsupportive	Quite unsupportive	Very unsupportive	Don't know	N/A
Medical staff in hospital	Medical staff in hospital Very supportive	Medical staff in hospital Quite supportive	Medical staff in hospital Neither supportive nor unsupportive	Medical staff in hospital Quite unsupportive	Medical staff in hospital Very unsupportive	Medical staff in hospital Don't know	Medical staff in hospital N/A
Medical staff in the community	Medical staff in the community Very supportive	Medical staff in the community Quite supportive	Medical staff in the community Neither supportive nor unsupportive	Medical staff in the community Quite unsupportive	Medical staff in the community Very unsupportive	Medical staff in the community Don't know	Medical staff in the community N/A
Friends	Friends Very supportive	Friends Quite supportive	Friends Neither supportive nor unsupportive	Friends Quite unsupportive	Friends Very unsupportive	Friends Don't know	Friends N/A
Family	Family Very supportive	Family Quite supportive	Family Neither supportive nor unsupportive	Family Quite unsupportive	Family Very unsupportive	Family Don't know	Family N/A
Spouse/partner	Spouse/partner Very supportive	Spouse/partner Quite supportive	Spouse/partner Neither supportive nor unsupportive	Spouse/partner Quite unsupportive	Spouse/partner Very unsupportive	Spouse/partner Don't know	Spouse/partner N/A
Mumsnet	Mumsnet Very supportive	Mumsnet Quite supportive	Mumsnet Neither supportive nor unsupportive	Mumsnet Quite unsupportive	Mumsnet Very unsupportive	Mumsnet Don't know	Mumsnet N/A
Other internet sites	Other internet sites Very supportive	Other internet sites Quite supportive	Other internet sites Neither supportive nor unsupportive	Other internet sites Quite unsupportive	Other internet sites Very unsupportive	Other internet sites Don't know	Other internet sites N/A
Specialist miscarriage, pregnancy loss or stillbirth organisations	Specialist miscarriage, pregnancy loss or stillbirth organisations Very supportive	Specialist miscarriage, pregnancy loss or stillbirth organisations Quite supportive	Specialist miscarriage, pregnancy loss or stillbirth organisations Neither supportive nor unsupportive	Specialist miscarriage, pregnancy loss or stillbirth organisations Quite unsupportive	Specialist miscarriage, pregnancy loss or stillbirth organisations Very unsupportive	Specialist miscarriage, pregnancy loss or stillbirth organisations Don't know	Specialist miscarriage, pregnancy loss or stillbirth organisations N/A
Bereavement support organisations	Bereavement support organisations Very supportive	Bereavement support organisations Quite supportive	Bereavement support organisations Neither supportive nor unsupportive	Bereavement support organisations Quite unsupportive	Bereavement support organisations Very unsupportive	Bereavement support organisations Don't know	Bereavement support organisations N/A
Your employer (if applicable)	Your employer (if applicable) Very supportive	Your employer (if applicable) Quite supportive	Your employer (if applicable) Neither supportive nor unsupportive	Your employer (if applicable) Quite unsupportive	Your employer (if applicable) Very unsupportive	Your employer (if applicable) Don't know	Your employer (if applicable) N/A
Your work colleagues (if applicable)	Your work colleagues (if applicable) Very supportive	Your work colleagues (if applicable) Quite supportive	Your work colleagues (if applicable) Neither supportive nor unsupportive	Your work colleagues (if applicable) Quite unsupportive	Your work colleagues (if applicable) Very unsupportive	Your work colleagues (if applicable) Don't know	Your work colleagues (if applicable) N/A

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* 22. If you do any kind of paid work, did you take time off from work while undergoing your miscarriage or pregnancy loss?

Yes

Not applicable

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* 23. If you are in paid employment, which of the following statements best sums up your experience?

I would have liked to take some leave from work, but didn’t feel able to ask for it

I asked to take some time off from work, but permission was refused

I asked to take some time off from work, and was allowed to do so

I didn’t need or want to take time off from work

N/A

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* 24. Some MPs are currently campaigning to introduce a statutory right to leave from work for women who experience pregnancy loss prior to 24 weeks, paid at the same level as statutory maternity pay. This would enable them to take a few days off work, as a right. To what extent do you agree or disagree with this proposal?

Strongly agree

Somewhat agree

Neither agree nor disagree

Somewhat disagree

Strongly disagree

Don't know

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* 25. What one thing, if any, would have improved your experience?

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* 26. How old are you?

Under 18

18-24

25-29

30-34

35-39

40-44

45-49

50-54

55-59

60-64

65 or older

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* 27. Where do you live (at present)?

North East

North West

Yorkshire & The Humber

East Midlands

West Midlands

East of England

London

South East

South West

Wales

Scotland

Northern Ireland

Isle of Man

Channel Islands

Republic of Ireland

Elsewhere (please specify country)

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* 28. How many children do you have in your family/household (of any age)?

None

One

Two

Three

Four

Five

Six or more

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* 1. How many episodes of pregnancy loss have you experienced in total (including prior to September 2018)?

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* 2. Thinking about your most recent episode of pregnancy loss: which of these best describes it?

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* 3. How many weeks pregnant were you when you lost your pregnancy? (Throughout this survey, if you have experienced more than one pregnancy loss since September 2018, please answer for your most recent experience.)

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* 4. Who among the following, if anyone, did you talk to about your pregnancy loss? Please select all that apply.(If you have experienced more than one pregnancy loss since September 2018, please answer for your most recent experience.)

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* 5. Were healthcare professionals aware of your pregnancy loss at any stage or did you deal with it without informing any medical staff? (If you have experienced more than one pregnancy loss since September 2018, please answer for your most recent experience.)

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* 6. If you were treated in hospital for your pregnancy loss, did any of the following happen to you?

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* 7. If you were referred for an initial scan to assess the situation, how long did you have to wait for the scan to take place?

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* 8. If you were referred for surgical management of miscarriage (previously known as ‘evacuation of retained products of conception', or ERPC), how many days did you wait between your diagnosis and the surgical procedure?

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* 9. If you miscarried or lost your pregnancy in hospital, how would you describe the information you were given about what would happen to the remains?

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* 10. If you miscarried at home following medical attention (expectant management), do you feel you were given good, clear information about how painful the experience might be?

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* 11. If you miscarried at home following medical attention (expectant management) did you feel you were given adequate pain relief medication?

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* 12. If you miscarried at home following medical attention (expectant management), do you feel you were given good, clear information about what the overall experience might be like, and how best to look after yourself or prepare others to look after you?

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* 13. After your miscarriage or other form of pregnancy loss (whether at home or in hospital), were you contacted by anyone related to your medical care who seemed unaware that you had lost the pregnancy? If so, by whom?

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* 14. If you were unhappy with the care you received from any healthcare professional or service, did you make any complaint afterwards?

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* 15. And if you were unhappy, but did not make a complaint, why not? Please tick all that apply.

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* 16. Was there anything about your care you were particularly happy or unhappy about? If so, please tell us about it if you’re comfortable doing so

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* 17. Were you...

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* 18. For each of the following NHS healthcare professionals who may have been involved in your treatment for miscarriage or pregnancy loss, please rate them for how empathetic and compassionate they were, where '5' is excellent and '1' is awful

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* 19. Throughout your miscarriage or pregnancy loss, how would you rate the information you were given by NHS healthcare staff?

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* 20. If you sought or received medical attention from the NHS, how would you rate your overall care?

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* 21. For each of the following sources of support for women who are miscarrying or experiencing pregnancy loss, please rate them for how sympathetic and compassionate they were.

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* 22. If you do any kind of paid work, did you take time off from work while undergoing your miscarriage or pregnancy loss?

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* 23. If you are in paid employment, which of the following statements best sums up your experience?

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* 25. What one thing, if any, would have improved your experience?

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* 26. How old are you?

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* 27. Where do you live (at present)?

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* 28. How many children do you have in your family/household (of any age)?

* 4. Who among the following, if anyone, did you talk to about your pregnancy loss? Please select all that apply.
(If you have experienced more than one pregnancy loss since September 2018, please answer for your most recent experience.)

* 5. Were healthcare professionals aware of your pregnancy loss at any stage or did you deal with it without informing any medical staff?
(If you have experienced more than one pregnancy loss since September 2018, please answer for your most recent experience.)