We are asking you to complete this survey because your child or a child you care for has taken part in research supported by the National Institute for Health and Care Research (NIHR). We fund and support research in the NHS as well as public health and social care research.

We want to make research better so that those who take part have the best experience possible. We would value your feedback to help us do this. Taking part in the survey is voluntary. The survey usually takes up to five minutes to complete. There are no right or wrong answers to any of the questions. It will not affect the care or treatment your child receives, whether or not you choose to leave feedback.


Privacy and Data Protection
This anonymous survey is being undertaken on behalf of the NIHR and as such, any information collected will be subject to the terms of use and protections as outlined in the NIHR Privacy Policy (www.nihr.ac.uk/documents/nihr-privacy-policy/12242). Your responses and comments will be shared anonymously with the NIHR and any healthcare providers (e.g. GP practice/hospital) involved in the research study you are/have been part of. No identifiable data will be shared with any third party.


This survey is for ages 0 to 6 - to be completed by a parent or carer.

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* 1. What is the name of the study your child is taking part in? (If you are unsure, please let us know as much as you can remember about the study.)

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* 2. If you know the study IRAS/CPMS number, please provide it here:

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* 3. Which organisation was your study with?

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* 4. What is the name of the hospital/clinic/health centre the visit took place in?

Please rate how strongly you disagree or agree with the following statements about your child's research experience. Please think about the research your child is currently participating in, or has most recently taken part in.

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* 5. The information that I received about the research when my child was invited to take part was easy for me to understand

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* 6. I feel I have been kept updated about this research study

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* 7. I know how I will receive the results of this research study

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* 8. I know how to contact someone from the research team if I have any
questions or concerns

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* 9. I feel research staff have valued my child taking part in this research study

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* 10. Research staff always treated my child with courtesy and respect

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* 11. I would consider my child taking part in research again

Please use the boxes below to explain your answers to the previous questions or provide any other feedback on your child's experience in this research. To maintain anonymity, please do not share any information in these boxes that could identify you or your child e.g. name, specific conditions/rare conditions.

We may use your comments in reports about research and for promotional activities, but we will remove any information that does/could identify you before publishing any of your feedback.

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* 12. What was positive about your child’s research experience?

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* 13. What would have made your child’s research experience better?

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* 14. How long has your child been taking part in this research study?

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* 15. Is this the first research study your child has taken part in?

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* 16. Who answered these questions?

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