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APPG on Osteoporosis and Bone Health 2022 Inquiry into Primary Care

Following our successful Inquiry Report into provision for osteoporosis in secondary care, we are turning our attention next to the role of primary care professionals in the care of people with osteoporosis. Typically, this includes your GP, practice nurse and pharmacist. 

In the course of our last Inquiry we heard concerning evidence of patients having to instigate their own assessments for osteoporosis, and of patients who found a worrying lack of expertise among the health professionals leading their care. 

We would like to hear your personal experience of primary care provision, both good and not so good. The information you provide us with will inform the APPG recommendations to Government, and your experience can help to drive improvement of services in future. Thank you for taking the time to filling out this survey.
The Royal Osteoporosis Society will use your contact details to send you information on the topics you have requested. Any data we gather will be used in accordance with our privacy policy at theros.org.uk/what-we-do/how-we-use-your-information/. To exercise your legal data rights, email: dataprotection@theros.org.uk.
1.Your contact details:
2.Do you have a diagnosis of osteoporosis, or are you completing this survey on behalf of someone you care for/a family member?
3.Have you had a fragility fracture at any point in the past? If so, please give details.
4.Please list any medications and vitamin supplements you have taken for you osteoporosis. 
5.Are you, or have you been in the care of a hospital? (secondary care)
 
If yes –

Who do you regard as ‘in charge’ of your osteoporosis care? (e.g. hospital service, GP, Osteoporosis specialist nurse)

How well did health professionals in the hospital service communicate with your GP surgery?
6.What role did primary care professionals (GP, practice nurse, first contact practitioner/physiotherapist or pharmacist) play in identifying your osteoporosis and providing you with a diagnosis? We are interested to know about your experience and the quality of the care you received.
7.Where do you go for information or advice about your condition (e.g. about side effects you may experience on treatment or symptoms). Please mark all that apply. 
8.When did you first access these sources of information?
9.We are interested in how primary care professionals support you to manage your osteoporosis in the long-term. 

How well have they addressed your concerns regarding symptoms, treatments, lifestyle changes and managing your own risk of fractures?
10.The next 3 questions are about your perception of primary care. Don't worry if you're not a clinical expert.

How satisfied are you with the expertise in osteoporosis of your GP:
11.How satisfied are you with the expertise in osteoporosis of your Practice Nurse?
12.How satisfied are you with the expertise in osteoporosis of your Pharmacist?
13.How do you think your primary care team could support you better in managing your osteoporosis?
14.Please tell us anything else you would like to about your experience of primary care and osteoporosis.
15.We are always keen to hear from people living with osteoporosis and your experiences. Would you would like the opportunity to share your story and help other people affected by osteoporosis?
16.Case studies are an excellent way for us to highlight the real-life experiences of people living with osteoporosis. Would you like to be considered for inclusion as one of our case studies?
Thank you for taking our survey. Your answers will help inform our inquiry into primary care.
Current Progress,
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