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PARATHYROID TRANSPLANTATION FOR TREATMENT OF
POST-THYROIDECTOMY HYPOPARATHYROIDISM
Patients’ needs and attitudes towards a new treatment
Part A: The severity of your condition
1.
The cause of your hypoparathyroidism is...
Injury to parathyroid glands during previous thyroid surgery
Injury to parathyroid glands during previous parathyroid surgery
Idiopathic (no cause known)
Genetic syndrome
Please provide any other details you think are relevant...
2.
For how many years have you suffered with this condition?
Less than 1 year
1-3 years
3-5 years
5-10 years
Over 10 years
3.
In the last 6 months, how many times have you needed emergency admission to hospital for treatment of severe symptoms or extremely low calcium levels?
Weekly
Monthly
Occasionally (please detail the number of visits)
4.
Due to the loss of your parathyroid glands, what do you think your overall quality of life is (consider personal, social and occupational aspects)?
[1 = Worst quality of life; 9 = Best quality of life]
1
2
3
4
5
6
7
8
9
1
2
3
4
5
6
7
8
9
5.
For each of these symptoms, tell us how severe you consider them to be...
[0 = Least Severe; 5 = Most Severe]
0
1
2
3
4
5
Numbness or tingling in hands/feet/lips
0
1
2
3
4
5
Muscle cramps
0
1
2
3
4
5
Headaches
0
1
2
3
4
5
Seizures
0
1
2
3
4
5
Bone pain
0
1
2
3
4
5
Fatigue
0
1
2
3
4
5
Generally low sense of well-being
0
1
2
3
4
5
6.
For each of these symptoms, please tell us how often you experience them...
Never
Intermittently
Most of the time
All of the time
Numbess or tingling sensations in hands/feet/lips
Never
Intermittently
Most of the time
All of the time
Muscle cramps
Never
Intermittently
Most of the time
All of the time
Headaches
Never
Intermittently
Most of the time
All of the time
Seizures
Never
Intermittently
Most of the time
All of the time
Bone pain
Never
Intermittently
Most of the time
All of the time
Fatigue
Never
Intermittently
Most of the time
All of the time
General sense of low well-being
Never
Intermittently
Most of the time
All of the time
7.
Do you have other symptoms (i.e. not mentioned in the previous question) that could be due to hypoparathyroidism? If yes, please give details…
Please detail your daily treatment to control the low calcium levels (name of drug, dose/day)
8.
Calcium supplements:
9.
Vitamin D supplements:
10.
Others- please detail:
11.
How much do you find having to take this treatment interferes with your daily life?
[1 = Doesn't interfere with daily life; 9 = Interferes a lot with daily life]
1
2
3
4
5
6
7
8
9
1
2
3
4
5
6
7
8
9
12.
In general, would you say your health is?
Excellent
Very good
Good
Fair
Poor
13.
Compared to one year ago, how would you rate your health now?
Much better than one year ago
Somewhat better than one year ago
About the same as one year ago
Somewhat worse than one year ago
Much worse than one year ago
14.
During the past 4 weeks, to what extent has your health (i.e. the symptoms of hypoparathyroidism) interfered with normal social activities with family, friends, neighbours, or groups?
Not at all
Slightly
Moderately
Quite a bit
Extremely
15.
During the past 4 weeks, to what extent has your health interfered with your normal work (including both work outside the home and housework)?
Not at all
Slightly
Moderately
Quite a bit
Extremely
16.
Does your health now limit you in these activities? If so, how much?
Yes, limited a lot
Yes, limited a little
No, not limited at all
Vigorous activities, such as running, heavy lifting objects or participating in strenuous sports
Yes, limited a lot
Yes, limited a little
No, not limited at all
Moderate activities such as moving a table, pushing a vacuum cleaner or playing golf
Yes, limited a lot
Yes, limited a little
No, not limited at all
Light activities such as climbing a flight of stairs, walking to shops or doing the washing-up
Yes, limited a lot
Yes, limited a little
No, not limited at all
