Skip to content
Check Screen Reader Mode to make this survey compatible with screen readers.
Check Screen Reader Mode to make this survey compatible with screen readers.
Health Rights for persons with albinism in the UK
*
1.
Age
(Required.)
Under 18
18-24
25-34
35-44
45-54
55-64
65+
2.
What is your nationality?
3.
What is your ethnicity?
White - British
Asian or Asian British
Mixed
Black or Black British
Prefer not to say
Other (please specify)
4.
What is your gender identity?
Male
Female
Transgender
Non-binary
Prefer not to say
Not specified above, please specify
5.
What is your sexual orientation?
Asexual
Bisexual
Gay
Heterosexual or straight
Lesbian
Pansexual
Queer
Prefer not to say
None of the above, please specify
6.
Which of the following best describes your current relationship status?
Married
In a registered civil partnership
Widowed
Divorced
Separated
Cohabiting with a significant other or in a domestic partnership
Single, never married
Prefer not to answer
7.
Do you identify with any of the following religions? (Please select all that apply.)
Christianity
Judaism
Islam
Buddhism
Hinduism
No religion
Prefer not to say
Other (please specify)
*
8.
Do you or a family member have albinism?
(Required.)
Me
My child/children
Other (please specify)
*
9.
What type of albinism do you/your family member have?
(Required.)
OA
OCA1
OCA2
OCA3
OCA4
HPS
CHS
Griscelli syndrome
I don't know
Other (please specify)
*
10.
Do you see albinism as a disability? (Please explain your answer)
(Required.)
*
11.
Which of the following categories best describes your employment status?
(Required.)
Employed, working full-time
Employed, working part-time
Not employed, looking for work
Not employed, NOT looking for work
Not able to work
Student
Retired
Prefer not to say
12.
Do you or the person with albinism in your care have access to reasonable adjustments at work or school?
Yes
No
I don't work/I am not a student
Other (please specify)
13.
Do you/your family member with albinism have an Education and Health Care (EHC) Plan in place?
Yes
No
I'm not sure what that is
Other (please specify)
Current Progress,
0 of 34 answered