Health Rights for persons with albinism in the UK

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* 1. Age

Under 18

18-24

25-34

35-44

45-54

55-64

65+

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* 2. What is your nationality?

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* 3. What is your ethnicity?

White - British

Asian or Asian British

Mixed

Black or Black British

Prefer not to say

Other (please specify)

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* 4. What is your gender identity?

Male

Female

Transgender

Non-binary

Prefer not to say

Not specified above, please specify

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* 5. What is your sexual orientation?

Asexual

Bisexual

Gay

Heterosexual or straight

Lesbian

Pansexual

Queer

Prefer not to say

None of the above, please specify

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* 6. Which of the following best describes your current relationship status?

Married

In a registered civil partnership

Widowed

Divorced

Separated

Cohabiting with a significant other or in a domestic partnership

Single, never married

Prefer not to answer

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* 7. Do you identify with any of the following religions? (Please select all that apply.)

Christianity

Judaism

Islam

Buddhism

Hinduism

No religion

Prefer not to say

Other (please specify)

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* 8. Do you or a family member have albinism?

My child/children

Other (please specify)

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* 9. What type of albinism do you/your family member have?

OCA1

OCA2

OCA3

OCA4

HPS

CHS

Griscelli syndrome

I don't know

Other (please specify)

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* 10. Do you see albinism as a disability? (Please explain your answer)

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* 11. Which of the following categories best describes your employment status?

Employed, working full-time

Employed, working part-time

Not employed, looking for work

Not employed, NOT looking for work

Not able to work

Student

Retired

Prefer not to say

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* 12. Do you or the person with albinism in your care have access to reasonable adjustments at work or school?

Yes

I don't work/I am not a student

Other (please specify)

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* 13. Do you/your family member with albinism have an Education and Health Care (EHC) Plan in place?

Yes

I'm not sure what that is

Other (please specify)