The Bobath Centre "Your Needs" Cerebral Palsy Survey

Introduction

Thank you for taking part in our survey.

We are interested in your needs as an adult with Cerebral Palsy and how they can be met by the Bobath Centre. We'd like our future direction to be as informed by you as possible, so your openness and feedback is invaluable. The survey is expected to take 5 minutes.

Thanks again and we really look forward to learning from your answers.

Question Title

1. Which of the following is affected by your Cerebral Palsy? (Please tick all that apply)

My Physical Health (muscles, joints etc.)

My Mental Health (stress, anxiety, depression etc.)

My Social Health (loneliness, isolation, social anxiety etc.)

In what way does Cerebral Palsy MOST affect you?

Question Title

2. As an adult affected by cerebral palsy, we'd like to know more about your specific needs. Please tell us how satisfied you are in general and what needs are currently not being met:

All of my needs are being met in relation to cerebral palsy

I have some outstanding support needs relating to cerebral palsy

None of my needs are being met in relation to cerebral palsy

My biggest needs are:

Question Title

3. We'd like to know which, if any, of the following are services you would like to have access to? Please tick all that apply to you, and please suggest any not on the list.

Access to volunteer or be invited to take part in research studies

Support in managing pain

Advice and positive examples of how to manage CP for my teenage children

Somewhere to share my story and expressed my needs

Medical consultations or signposting for other health issues

Adult specific physical therapy

A check in service/annual check up service

Mental health services (one to one)

Occupational therapy

Online advice and literature I can read at home at my own pace

Speech and language therapy

Signposting to other services (CP and Non-CP related) if the Bobath Centre could not directly offer them

An evidence base that I can access and learn about new developments in CP

Expert or peer advice and social support (group sessions)

A place to talk with my peers and others affected by Cerebral Palsy

Other (please specify)

Question Title

4. Are you more likely to access these services:

Only online

Only in person

Both/Either

Which are you less likely to access online, and why?

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5. The Bobath Centre has a vision of becoming the go to service provider for anyone affected by cerebral palsy. In your own words, and with no restrictions in place, what would the ideal service provision centre look like and what should the Bobath Centre do to achieve that goal for you?

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6. Gender

Male

Female

Prefer not to say

Other (please specify)

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7. Age

Under 18

18-29

30-39

40-49

50-59

60-64

65+

Question Title

8. How did you hear about this survey?

Website

Friend/Family

Google

Support group

Other (please specify)

Question Title

9. Location (Postcode only)

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10. Thank you and we really appreciate your thoughts and insights. If we have missed anything or you have any other comments please feel free to add them below or find us at www.bobath.org.uk/contact-us

All data will be stored in compliance with GDPR regulations and all responses will be anonymised and used to contribute to our research report. No data or personal information will be shared with any third-party organisations.