Developing the North Yorkshire All Age Autism Strategy

We need your help. We need autistic people and parent/family carers to tell us the important things that need improving in North Yorkshire in order for you to live a good life.
   
Please help by completing the questionnaire below.
 
The questionnaire needs to be returned by Wednesday 31st May 2023.
 
North Yorkshire Council, the North Yorkshire NHS, and the Community and Voluntary Sector in North Yorkshire want to make sure the lives of autistic People who live or work in the North Yorkshire area improve.
 
Between us all, we need to develop a strategy (big plan) from 2024-2026. This will ensure that work is carried out on the areas that you tell us need improving and that are important to your quality of life.

If you need any help or support to complete this questionnaire or you need the questionnaire in a different format, including a hard copy, easy read or other format please contact either:

Sandy.Marshall@inclusionnorth.org or mobile 07767 776125
Annabell.Kesby@inclusionnorth.org or mobile 07494 740686

We have asked Inclusion North to help us with this piece of work. They are facilitating the questionnaire and focus groups and will write a report about what autistic people and family/parent carers have said.
 
The questionnaire does not ask for your name or other personal contact details. Inclusion North will share your anonymous responses with North Yorkshire Council in order to inform the Autism Strategy.
 
By completing this survey, you give your consent for this to happen.
 
Any enquiry to Inclusion North to provide information to help assist you in completing the form will not be held for any other reason or passed to North Yorkshire Council. 
 
When answering any questions please do not put any identifiable personal information into your answers.  Thank you.
 
Please see the following privacy statements.
 
Inclusion North Privacy Policy 

Health and Adult Services Participation and Engagement Privacy Notice | North Yorkshire Council

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* 1. Are you?

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* 2. Do you know where to go to get help and support with your money or benefits?

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* 3. Please rank the following statements in order of preference

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* 4. Do you think that the people who you meet understand autism? This includes health and social care professionals, business professionals and transport services.

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* 5. Have you ever asked for a reasonable adjustment to be made?

(Reasonable adjustments are changes made to remove or reduce a disadvantage related to someone's disability – for example a longer GP appointment)

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* 6. Do you think people who are responsible for making decisions about providing different types of services understand the impact of changes that happen throughout life for autistic people?

For example, moving through schools, becoming an adult, parents dying, getting or losing a job.

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* 7. Have you ever experienced being treated unfairly because you are autistic?

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* 8. If you are you an autistic person in education now, are you getting the right support?

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* 9. As an autistic young person, do you think there is enough information and support for you to prepare for adulthood?

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* 10. Are you an autistic person who is currently employed or are you looking for employment?

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* 11. As an autistic person have you been supported to look for suitable employment?

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* 12. What else do you think would help autistic people into employment?

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* 13. If you have had a diagnosis of autism or are awaiting an assessment, how happy were you with the length of time you had to wait for an assessment?

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* 14. After your diagnosis did you get any post-diagnosis support or follow up or anything to help you in your daily life with your diagnosis?

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* 15. As an autistic person can you access the health services you require?

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* 16. As an autistic person are you able to find the information and/or support that you need, when you need or want it?

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* 17. Do you feel accepted in your local community? For example, where you live, in interest groups, or faith communities?

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* 18. Do you think you are getting similar opportunities to other people in your community to improve your skills and to be independent?

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* 19. As an autistic person do you feel safe in the area you live and that you are treated with respect and dignity?

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* 20. How easy is it for you to stay connected to your friends and families and community support groups?

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* 21. Are you involved in any community activities such as at your local leisure centre, sporting activities or arts and crafts groups?

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* 22. Do you have the opportunity to be part of decisions made in the area where you live?

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* 23. What is your current housing situation?

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* 24. If you currently live with family or carers, would you like to be able to live in your own home in the future?

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* 25. If you would like to live independently, what do you think are the main barriers to you being able to do this?

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* 26. Do you think the Criminal Justice System needs to be more accessible to autistic people?

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* 27. As an autistic person have you been involved in working together (co-production) with either the local authority or the NHS or voluntary/community sector?

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* 28. Please tell us in the box below if there is anything else you think may improve the lives of autistic people?

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* 29. As a family/parent carer of an autistic child/young person who is at school, do you think your child/young person is getting appropriate support?

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* 30. As a family carer of an autistic child/young person, how easy has it been for you to access the right educational setting for your child/young person?

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* 31. As a family/parent carer of an autistic child or young person who is preparing for adulthood, do you think there is enough available information and support?

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* 32. As a family/parent carer do you get all the help and support you need to care for your autistic family member?

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* 33. As a family/parent carer what do you think might support family carers/friends of autistic people? Please rank in order of preference

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* 34. Please can you tell us whether you have had a Carer’s Assessment from your local Adult Social Care services?

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* 35. As a family/parent carer have you been involved in any working together (co-production) with either the local authority, the NHS or the Community and Voluntary sector?

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* 36. Please tell us in the box below if there is anything else you think may improve the lives of family/parent carers of autistic people?

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