SBH Scotland are working to find out more about the inequalities faced by people with spina bifida and/or hydrocephalus. This will help us to steer our services towards addressing these issues. 
Section One: Information About You

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* 1. Name

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* 2. Email address

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* 3. Gender

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* 4. Are you?

Section Two: Education & Employment

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* 5. Has living with SB/H affected your access to education or employment?

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* 6. What further support would have been useful for your education or employment journey?

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* 7. If education and employment are not accessible for you, do you feel there is support available for you to try other pursuits e.g. volunteering, hobbies, community involvement?

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* 8. What advice would you give other people with SB/H to help them through education or employment?

Section 3: Cost-of-living

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* 9. Has the cost of living affected your daily life?

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* 10. Do you worry about any of the following in relation to the cost-of-living?

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* 11. If you checked any of the boxes above how worried would you say you are about these issues?

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* 12. Do you feel there are enough support mechanisms in place to help you through the cost-of-living crisis?

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* 13. Has the cost of living affected any support or treatment you received for your health and wellbeing? e.g. you can no longer attend an exercise class or getting to appointments is more expensive

Section 4: Access to health and social care 

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* 14. Have you experienced any challenges in accessing health care?

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* 15. Are there any issues relating to your health that you wish you could receive more support for?

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* 16. Do you feel listened to by healthcare staff?

Section 5: Housing 

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* 17. Has your health condition affected your access to housing?

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* 18. Do you feel you receive enough support in accessing housing for your needs?

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* 19. What improvements do you think could be made to the housing system for people with disabilities in Scotland?

Section 6: Human Rights 

Human rights are rights or freedoms which belong to all human beings e.g. the right to life, the right to health. There are specific laws and policies in Scotland which are used to protect the human rights of people with disabilities.

Knowledge of human rights can be used as a tool for people with disabilities and their families to ensure they receive equal access to society. They can ensure people receive what they are entitled in terms of healthcare, education, social care, housing and much more!

SBH Scotland is currently working improve our understanding of how human rights link to our organisation.
We are keen to find out what your knowledge is about human rights and the rights of person's with disabilities. This will help us to understand the areas we must provide more information in.

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* 20. Do you have any knowledge about human rights or rights for people with disabilities?

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* 21. Would you like to learn more about how human rights can be used to protect people with disabilities?

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* 22. Do you think the rights of people with disabilities need more protection in Scotland?

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* 23. Have there been times where you feel your rights have not been respected?

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