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International adrenal research for patient benefit
1.
What is your e-mail address?
2.
What country are you working in?
3.
What hospital and city do you work in?
4.
What is your name?
5.
Which glucocorticoid (and what dose) do you use for primary adrenal insufficiency currently?
6.
Which of the following will you be able to record for each patient routinely
baseline blood pressure
baseline weight and height
Waist and hip circumference
fasting glucose
random glucose (2h after food)
fasting lipids
random lipids (2h after food)
HbA1c
FBC, electrolytes
calcium and phosphate
PTH
vitamin D
DEXA scan
bone turnover markers such as osteocalcin or P1NP
urine N-telopeptide
diary of periods of illness such as respiratory tract infections
7.
How many patients do you plan to recruit in the next 6 months
8.
Do you want a copy of the ethics application used in the UK that you can modify for your own ethics committee? This could be viewed as an audit, in some countries.
Yes please
No, we have ethics proformas that need to be done from scratch
No, this will be an audit for us, so no ethics required
9.
How will you publish the data?
as an abstract
as a paper locally
as part of a multicentre study by adding the data to the data at Imperial
all of the above