Cure DM - Myotonic Dystrophy UK Community
Cure DM have arranged this survey to better understand the community that we support and to help us to make that support more effective. Knowing about the real issues we all face helps charities, healthcare and researchers to develop and provide help for us all.
This survey is anonymous. If information is shared with researchers, it will NOT have anything traceable to you. If research is published, it will be shared on our website (www.cmmd.uk) and, again it will be completely anonymous.
In the survey we are asking for the nearest town to which you live (Nottingham, London, Hull, etc).
If you wish Cure DM to keep in touch with you, please add your contact details at the end of the survey. This information will be held securely by Cure DM and will NOT be passed to researchers or anyone else.
There are 10 questions and it should only take a few minutes to complete. Please fill out a separate questionnaire for each member of your family with Myotonic Dystrophy. We would really appreciate it if you could please pass this survey to anyone else that may be able to help - the more answers we receive, the more useful it will be for everyone!
If a member of your family has sadly passed away, we would invite you to complete the questionnaire on their behalf if you wish.
Thank you for your support, and for helping with this project – it is very much appreciated! If you have any questions, please contact us.