PPI – Public & Patient Involvement
PPI – Public & Patient Involvement Survey
Please take a few minutes to complete this survey. All responses will remain anonymous.
Criteria
1. Affected by lymphoedema to having breast cancer treatment
2. No known mental disability
OK
1.
Are you working?
Yes
No
Retired
2.
Are you retired due to ill health?
3.
Are you not working due to ill health?
4.
Has your working pattern changed because of your lymphoedema ?
Yes
No
Sometimes
Not applicable
5.
Do you wear compression sleeves to control your lymphoedema?
Yes
No
Sometimes
6.
Who advised you to wear your compression sleeves?
Breast care nurse
Breast care surgeon
GP
Lymphoedema nurse
Other
7.
How long have you been wearing a compression sleeve? Select the duration.
Never
Less than 1 month
Between 1 and 6 months
Between 6 months and 1 year
Between 1 and 5 years
More than 5 years
More than 10 years
8.
How long do you wear your compression sleeve each day?
<3 hours
3-6 hours
6-9 hours
9-12 hours
More than this
9.
Do you wear your compression sleeve at night?
Yes
No
Sometimes
10.
Do you feel comfortable wearing compression sleeves?
Yes
No
Sometimes
11.
If you are not comfortable, then why?
12.
Do you remove the compression sleeve if it is uncomfortable?
Yes
No
Sometimes
13.
Can you use your arm freely while you are wearing your sleeve?
Yes
No
Difficulty in using
Easy
Painful
NA
14.
Would you like the option of having a personalised sleeve made for you?
Yes
No
15.
How often do you wash your compression sleeve?
Everyday
Alternate days
After every 3 days
Weekly
Monthly
16.
Does it feel different after washing?
Firmer
Looser
Softer
No different
17.
Do you need someone’s help to apply your compression sleeve?
Yes
No
Sometimes
18.
Do you want a compression sleeve that feels light or thin?
Yes
No
Don’t know
19.
Do you find your skin itches while you are wearing your compression sleeve?
Yes
No
Sometimes
20.
Does this bother you?
Yes
No
Sometimes
21.
Do you find you sweat a lot underneath your compression sleeve ?
Yes
No
Sometimes
22.
Does this bother you?
Yes
No
Sometimes
23.
If you have to pay for your sleeve, do you find this is expensive and difficult to afford?
Yes
No
24.
Do you feel the compression sleeve is controlling your lymphoedema?
Yes
No
Sometimes
Don’t know
25.
Do you feel comfortable wearing your clothes over your compression sleeves?
Yes
No
Sometimes
26.
How often are you prescribed a new compression sleeve?
Monthly
3 monthly
Six monthly
Yearly
27.
Do you buy additional compression sleeves to the ones you are given?
Yes
No
Sometimes
28.
Do you feel your compression sleeve negatively affects your appearance?
Yes
No
29.
Are you able carry out leisure activities wearing your compression sleeve?
Yes
No
Sometimes
Current Progress,
0 of 29 answered